My son Alfie who is almost 10 has never let anything stand in his way despite now being blind in one eye and having Nystagmus. Alfie persevered in learning how to … Continue reading How amazing is Alfie?
Tag: nystagmus
How amazing is Hannah?
When I first started school I really struggled to read. It took me months and months to read the first Harry Potter book for myself in large print. I got … Continue reading How amazing is Hannah?
How amazing is Freya?
I was born with nystagmus and always struggled at school both in the classroom and in PE. All throughout my education it’s been a continuous trip to the printer to … Continue reading How amazing is Freya?
Caaaaaaaaaaaake!!!
There are bound to be loads of bake sales for Nystagmus Awareness Day 2018 on 20 June, so we thought it would be a great idea to have some Nystagmus … Continue reading Caaaaaaaaaaaake!!!
Snow Camp VIPs
If you’ve signed up for the first Snow Camp of 2018, on 17 June, here’s a little taster of what to expect on the day. There’ll be skiing and sledging … Continue reading Snow Camp VIPs
Please vote for Ben
Ben Haynes is a talented young musician who just happens to have albinism and nystagmus. Ben has entered a music competition and needs your vote. We’ll let Ben explain … … Continue reading Please vote for Ben
You could win £450 for the Nystagmus Network
SMALL CHARITY WEEK begins on Monday 18 June. If the Nystagmus Network is your favourite small charity, why not enter the Facebook, Twitter or Instagram competition to help us win … Continue reading You could win £450 for the Nystagmus Network
Manchester half marathon places available
Would you like to run the Manchester half marathon this October to raise money for the Nystagmus Network? The race takes places on Sunday 14 October. It starts and finishes by … Continue reading Manchester half marathon places available
Nystagmus Network article published
To achieve our objective of raising greater awareness of nystagmus, the charity publishes articles from time to time on different aspects of the condition. The article we submitted for publication … Continue reading Nystagmus Network article published
Sponsors sought for Open Day 2018
The biggest nystagmus event of the year takes place on Saturday, 29 September in Birmingham. This is our annual Open Day, where 200 nystagmus families get together to talk about … Continue reading Sponsors sought for Open Day 2018