Matt has nystagmus, but, as his Mum tells us, he is on the road to a stellar career. Matt is currently the director / choreographer for a production of Joseph … Continue reading How amazing is Matt?
Tag: nystagmus
How amazing is Rocco?
Rocco is 6 years old. He has Ocular Albinism and nystagmus, he also has other disabilities, but, for the first time in his life, his parents have got a report … Continue reading How amazing is Rocco?
How amazing is Mehak?
Growing up with nystagmus and albinism, I hated school and social interaction. I was always self-conscious and easily embarrassed that my weak eyesight, poor balance and hypersensitivity to sunlight made … Continue reading How amazing is Mehak?
How amazing is Rylan?
Rylan’s Mum says: “My son Rylan was only diagnosed with nystagmus in Reception at school, although I had always noticed his eyes swinging from side to side. He is just … Continue reading How amazing is Rylan?
Marsha De Cordova MP on nystagmus
We are delighted to be able to welcome Marsha De Cordova MP, Shadow Minister for Disabilities, as our keynote speaker at this year’s Open Day in September. As a sneak … Continue reading Marsha De Cordova MP on nystagmus
How amazing is Alfie?
My son Alfie who is almost 10 has never let anything stand in his way despite now being blind in one eye and having Nystagmus. Alfie persevered in learning how to … Continue reading How amazing is Alfie?
How amazing is Hannah?
When I first started school I really struggled to read. It took me months and months to read the first Harry Potter book for myself in large print. I got … Continue reading How amazing is Hannah?
How amazing is Freya?
I was born with nystagmus and always struggled at school both in the classroom and in PE. All throughout my education it’s been a continuous trip to the printer to … Continue reading How amazing is Freya?
Caaaaaaaaaaaake!!!
There are bound to be loads of bake sales for Nystagmus Awareness Day 2018 on 20 June, so we thought it would be a great idea to have some Nystagmus … Continue reading Caaaaaaaaaaaake!!!
Snow Camp VIPs
If you’ve signed up for the first Snow Camp of 2018, on 17 June, here’s a little taster of what to expect on the day. There’ll be skiing and sledging … Continue reading Snow Camp VIPs