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Tag: music

Julia smiles at the camera.

Julia’s musical adventures


A guest post. A couple of years ago, I wrote a piece about being a parent with nystagmus of a child without. That child is now old enough to tell … Continue reading Julia’s musical adventures

Posted on February 19, 2020February 19, 2020Author Sue RickettsCategories Guest posts, Living with nystagmusTags music, nullpoint, nystagmus

Little Amber – there to help


Nystagmus Network’s Rachel, writes: Here at the Nystagmus Network we’re always looking for new opportunities for our members. Recently we came across a charity awarding grants to blind and partially … Continue reading Little Amber – there to help

Posted on September 19, 2018March 22, 2024Author Sue RickettsCategories Information and Support, Living with nystagmus, Parent storiesTags Amber Trust, music

How amazing is James?


Nystagmus Dad, Robin, writes: My 9 year old son, James, has OC Albinism and Nystagmus, but he and I started learning the guitar together about 3 years ago ( he … Continue reading How amazing is James?

Posted on June 14, 2018Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness Day, Parent storiesTags amazing nystagmus success stories, music, nystagmus, ZING

Please vote for Ben


Ben Haynes is a talented young musician who just happens to have albinism and nystagmus. Ben has entered a music competition and needs your vote. We’ll let Ben explain … … Continue reading Please vote for Ben

Posted on May 25, 2018Author Sue RickettsCategories Living with nystagmusTags albinism, Ben Haynes, competition, music, nystagmus, vote

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