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Supporting people living with nystagmus

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Tag: nystagmus

Please vote for Ben


Ben Haynes is a talented young musician who just happens to have albinism and nystagmus. Ben has entered a music competition and needs your vote. We’ll let Ben explain … … Continue reading Please vote for Ben

Posted on May 25, 2018Author Sue RickettsCategories Living with nystagmusTags albinism, Ben Haynes, competition, music, nystagmus, vote

You could win £450 for the Nystagmus Network


SMALL CHARITY WEEK begins on Monday 18 June. If the Nystagmus Network is your favourite small charity, why not enter the Facebook, Twitter or Instagram competition to help us win … Continue reading You could win £450 for the Nystagmus Network

Posted on May 24, 2018May 25, 2018Author Sue RickettsCategories Posts, Small Charity WeekTags #ILoveSmallCharities, awareness, nystagmus, Small Charity Week

Manchester half marathon places available


Would you like to run the Manchester half marathon this October to raise money for the Nystagmus Network? The race takes places on Sunday 14 October. It starts and finishes by … Continue reading Manchester half marathon places available

Posted on May 24, 2018May 24, 2018Author Sue RickettsCategories FundraisingTags free run places, fundraising, Manchester half marathon, nystagmus

Nystagmus Network article published


To achieve our objective of raising greater awareness of nystagmus, the charity publishes articles from time to time on different aspects of the condition. The article we submitted for publication … Continue reading Nystagmus Network article published

Posted on May 22, 2018Author Sue RickettsCategories Information and Support, Living with nystagmusTags article, awareness, children, nystagmus, publications, Wobbly Eyes

Sponsors sought for Open Day 2018


The biggest nystagmus event of the year takes place on Saturday, 29 September in Birmingham. This is our annual Open Day, where 200 nystagmus families get together to talk about … Continue reading Sponsors sought for Open Day 2018

Posted on May 8, 2018Author Sue RickettsCategories Events, Open Day 2018Tags nystagmus, nystagmus network, Open Day, sponsorship

Fight for Sight partners with the Nystagmus Network for its next grant round


Fight for Sight has today announced a call for Small Grant Award applications. The UK’s leading eye research charity is this year able to offer thirteen awards to fund sight … Continue reading Fight for Sight partners with the Nystagmus Network for its next grant round

Posted on May 1, 2018Author Sue RickettsCategories researchTags Fight for Sight, nystagmus, quality of life, research grants

Sue attends APPG meeting on eye research


Sue attended a meeting yesterday at the House of Commons of the All Party Parliamentary Group for Eye Health and Visual Impairment. The subject of the meeting was eye research. … Continue reading Sue attends APPG meeting on eye research

Posted on April 26, 2018Author Sue RickettsCategories researchTags nystagmus, nystagmus research
A child swimming underwater.

How amazing are you?


Have you done something amazing, something you never thought possible, because you have nystagmus? Has your child exceeded all your expectations? If so, we want to hear from you. Last … Continue reading How amazing are you?

Posted on April 26, 2018May 4, 2018Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness DayTags adult, amazing nystagmus success stories, children, fundraising, living with nystagmus, nystagmus

Nystagmus in the open and the Big Blind Walk


On national and international Nystagmus Awareness Day, Wednesday 20 June, why not help us really get ‘nystagmus in the open‘ by joining Julian Jackson on one of the final legs … Continue reading Nystagmus in the open and the Big Blind Walk

Posted on April 18, 2018Author Sue RickettsCategories Charity highlights, Events, Fundraising, Nystagmus Awareness DayTags awareness, Big Blind Walk, nystagmus, nystagmus in the open, research
People stand at a clinic reception holding Nystagmus Network balloons.

Nystagmus Awareness Day – for clinics


Please help us to promote national and international Nystagmus Awareness Day, on Wednesday 20 June, in clinics and hospitals all over the UK and the world. We have free to … Continue reading Nystagmus Awareness Day – for clinics

Posted on April 18, 2018Author Sue RickettsCategories Events, Fundraising, Information and Support, Nystagmus Awareness DayTags awareness, clinics, hospitals, living with nystagmus, nystagmus, support

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