Please join us for our virtual quiz night every Saturday at 7pm.
Get everyone together in one room, sign up, log in and away you go.
It’s great fun!
There are cash prizes for 1st, 2nd and 3rd placed players.
Thank you for your support. Taking part in the quiz is helping us keep delivering our support and information services.
The competition is really hotting up now as more and more players are signing up to take part in the weekly Nystagmus Network virtual quiz night on Saturdays at 7pm.
Get everyone together in one room, sign up, log in and away you go.
It’s great fun and getting very competitive.
There are cash prizes for 1st, 2nd and 3rd placed players.
Thank you for your support. Taking part in the quiz is helping us keep delivering our support and information services.
We may all be staying at home, but we can still mark national and international Nystagmus Awareness Day. Here are just some of the ways you can get involved.
In the run up to Nystagmus Awareness Day 2020, we are once again asking you to share your amazing nystagmus success stories. Not only do these stories help raise awareness of nystagmus, but they also bring hope to so many parents whose children have just been diagnosed. In previous years we’ve heard some truly amazing stories of success or achievement despite, or maybe even because of, having nystagmus. Let’s make 2020 even more amazing!
We want to raise as much awareness of nystagmus as possible this year and make sure that everyone has a chance to take part, so we’re running our wobbly photography competition: The View From My Window
We know that lots of people who have nystagmus are also keen photographers. Whether you have nystagmus or not, whether you have the latest camera or just a phone, and wherever you are in the world, you can take part.
The Nystagmus Network is running a Virtual Quiz Night every Saturday at 7pm throughout lockdown. On Nystagmus Awareness Day, 20 June, the quiz promises to be our biggest and best yet. There are cash prizes for 1st, 2nd and 3rd places. So what are you waiting for? Get everyone signed up now!
Our fabulous new publication, Nystagmus is …, inspired by the wonderful Roger, will be launched on Nystagmus Awareness Day 2020. The booklet is full of contributions from people who have nystagmus, describing how they feel about it and how it affects their lives. For the first time people can read what it’s really like to have nystagmus by the people who really know.
Nystagmus is … will be available FREE from our online shop on 20 June 2020, but you can pre-order your copy NOW. Simply email us at [email protected].
We have loads of teaching and learning materials available to help mark Nystagmus Awareness Day. There are posters to colour, bunting to make, a PowerPoint presentation, a lesson plan and our booklet especially for children ‘Wobbly Eyes”.
Lockdown doesn’t stop us! Don’t let it stop you! Especially not on Nystagmus Awareness Day!
Here at the Nystagmus Network we raise awareness of the condition every single day of the year, because we believe that the more people who know about it the better. It means that adults and children who have nystagmus will get the help, support and services they need in education, employment, health, mobility and leisure and everyone affected will enjoy a better quality of life.
Holding a national and international Nystagmus Awareness Day serves as a reminder to everyone that we are here and our voices need to be heard. Every time you take part in Nystagmus Awareness Day or tell someone what you’re doing and why, that’s one more person who understands what nystagmus is.
Every pound you raise or donate helps the Nystagmus Network support our research teams across the UK to investigate this hugely complex condition, to find better diagnosis, treatments and continue to work towards prevention and cure.
Thank you for your support
We’re still here supporting the 1 in 1,000 people who have congenital or acquired nystagmus, by phone, email and on social media, but we do need your support now more than ever before to carry on.
With marathons, 10k runs, sky dives and tough mudders all postponed for the summer, there’s still lots of opportunity to take part in virtual runs and challenges right now.
Make the most of your time outdoors (or inside!) with a fabulous fundraising challenge. Choose from Climb Everest, the Inca Trail, Team Gotham and many more.
1. Sign yourself up
2. Set up your Justgiving page for sponsorship
3. Take part in your virtual challenge
The Local Landmarks Challenge is a solo, virtual run, around your local landmark. That could be anything from your local church, castle, park, statue or even post-box. You decide the distance.
Are you walking someone’s dog, doing their shopping or collecting their medicine? That’s brilliant! Why not get sponsored for it? Set up a JustGiving page to get you started.
Join our virtual Quiz Night. We’re running a fun Nystagmus Network virtual quiz night every Saturday at 7pm.
It’s a great way to get everyone together and there are cash prizes for the 1st, 2nd and 3rd placed players.
Celebrate your birthday in lockdown with a birthday fundraiser.
If all that’s just a too bit energetic, please consider making a donation to the Nystagmus Network
Why not donate what you would normally spend on travelling to work?
Could you donate what you normally spend at the coffee shop?
Think of the money you’re saving with all those nights in!
Thank you to everyone who took part in the very first Nystagmus Network virtual quiz night last week.
There may have been a few technical hitches, but it was certainly fun, got us all together and was just a little bit competitive!
Congratulations to Sara, Nick and Rogier for walking away with the cash prizes for 1st, 2nd and 3rd place. You wiped the floor with the rest of us!
Please join us again this week. Click the link to sign up, get your entry code by email and log in at 7pm on Saturday.
Want to test your general knowledge?
Think you’re the brainiest person in the whole nystagmus community?
Now’s your chance to prove it!
As well as the glory of winning there are cash prizes for 1st, 2nd and 3rd placed players.
Good luck, everyone!
Sign up NOW.
