Skip to content
Nystagmus Network eye logo with Registered Trade Mark symbol

Nystagmus Network

Supporting people living with nystagmus

  • Information
    • Congenital Nystagmus
    • Acquired Nystagmus
  • Support
  • Awareness
  • Research
  • Get involved
  • Shop
  • Health Care Practitioners
  • Join us
  • News
  • 25 for ’25
  • DONATE
Search

Tag: lockdown

Neil sits on a bench.

Nystagmus in lockdown


In this Guest Post, Neil writes about his experiences of lockdown as a visually impaired person. I’m registered partially sighted and diagnosed with nystagmus and ocular albinism from birth. Both … Continue reading Nystagmus in lockdown

Posted on June 19, 2020June 19, 2020Author Sue RickettsCategories Guest posts, Living with nystagmus, Nystagmus Awareness DayTags ahopping, COVID-19, independent living, lockdown, nystagmus, ocular albinism, social distancing
Sue with knitted mascots.

Sue’s still knitting!


From now until 26 May, this is Sue’s daily schedule: 45 minutes yoga 8 hours working at the Nystagmus Network 1 hour walking her dogs Then carry on with her … Continue reading Sue’s still knitting!

Posted on April 29, 2020April 28, 2020Author Sue RickettsCategories FundraisingTags COVID-19, lockdown, mascots, nystagmus, nystagmus network, The Two Point Six Challenge
2 knitted mascots.

Sue’s Two Point Six Challenge


Sunday 26 April 2020 was to have been the date of the London Marathon with runners raising £millions for UK charities. The Nystagmus Network’s runner, Adam, is still training to … Continue reading Sue’s Two Point Six Challenge

Posted on April 28, 2020April 30, 2020Author Sue RickettsCategories FundraisingTags COVID-19, lockdown, London Marathon 2020, mascots, nystagmus, nystagmus network, sponsor, The Two Point Six Challenge

Nystagmus Awareness Day 2020


We may all be staying at home, but we can still mark national and international Nystagmus Awareness Day. Here are just some of the ways you can get involved. How amazing are … Continue reading Nystagmus Awareness Day 2020

Posted on April 15, 2020April 17, 2020Author Sue RickettsCategories Charity highlights, Fundraising, Nystagmus Awareness Day, Nystagmus heroesTags competition, lockdown, nystagmus network, photography, Virtual quiz night, wobbly
Nystagmus Network logo.

Lockdown fundraisers


Lockdown doesn’t stop us! Don’t let it stop you! We’re still here supporting the 1 in 1,000 people who have congenital or acquired nystagmus, by phone, email and on social … Continue reading Lockdown fundraisers

Posted on April 9, 2020April 9, 2020Author Sue RickettsCategories FundraisingTags Justgiving, lockdown, nystagmus network, virtual challenge, Virtual quiz night, virtual run

Contact us

info@nystagmusnet.org

01427 718093

6 Lancaster Gardens Kingston upon Thames
KT2 5NL

Policies

  • Privacy policy
  • Diversity statement
  • Complaints procedure
  • Sight Loss Sector Charter

Legal

  • Annual report

Registered charity number 1180450

Nystagmus Network is a registered Trade Mark

Nystagmus Network on Foundation Info.

Donate

Social media

  • Facebook
  • X (Twitter)
  • Instagram
  • Youtube


Privacy Statement © The Nystagmus Network®. All rights reserved. Registered Charity Number in England and Wales - 1180450
  • Facebook
  • X (Twitter)
  • Instagram
  • Youtube