Nystagmus doesn’t stop me …


The theme of the Nystagmus Network virtual Open Day 2020 is the phrase ‘Nothing will stop us!” That’s because we believe that nystagmus needn’t stop you from doing (almost) anything you want to do. So this month we’re running our Open Day 2020 COMPETITION! To enter, all you have to do is show us what nystagmus doesn’t stop you from … Continue reading Nystagmus doesn’t stop me …

Nothing will stop us!


The theme of the Nystagmus Network virtual Open Day 2020 is the phrase ‘Nothing will stop us!” That’s because we believe that nystagmus needn’t stop you from doing (almost) anything you want to do. So today we’re launching our Open Day 2020 COMPETITION! To enter, all you have to do is show us what nystagmus … Continue reading Nothing will stop us!

Nystagmus Awareness Day 2020


We may all be staying at home, but we can still mark national and international Nystagmus Awareness Day. Here are just some of the ways you can get involved. How amazing are you? In the run up to Nystagmus Awareness Day 2020, we are once again asking you to share your amazing nystagmus success stories. Not only … Continue reading Nystagmus Awareness Day 2020

Our Christmas photo competition


Following the success of the Nystagmus Network photography competition in 2017 in honour of our former trustee, the late Steve McKay, we’ve decided to launch a Christmas 2018 photo competition. The winning photograph will feature on our 2019 Christmas cards. Entrants can be any age. They must have nystagmus themselves or be the close relative … Continue reading Our Christmas photo competition

Please vote for Ben


Ben Haynes is a talented young musician who just happens to have albinism and nystagmus. Ben has entered a music competition and needs your vote. We’ll let Ben explain … Hi everyone. I’m a self employed musician from Nottingham with Albinism and Nystagmus. I performed a few songs at the Nystagmus Network Open day in … Continue reading Please vote for Ben