A blue and green striped egg with the words Nystagmus Network and the number 1 on it in white.

Join our virtual Easter Egg Hunt

🐰🌷 Ready to hop into some Easter fun?

Join our virtual Easter Egg Hunt through our website to find hidden eggs🥚each with a letter on it to be discovered!

Collect all 9 letters and unscramble them to reveal a secret word!

Then email us at  [email protected] with the correct word to win egg-cellent prizes!

🏆 Let’s spread joy and support Nystagmus Network this Easter!

Get cracking and start your hunt NOW! 🐣

HINT – the eggs look like the one at the top of this post, but have letters on them instead of a number!

 

A stack of pancakses on a plate topped with butter, strawberries and blueberries.

Join us for a flipping fantastic celebration

Calling all pancake enthusiasts and creative cooks! It’s time to dust off your spatulas and put your culinary skills to the test because the Nystagmus Network is hosting an exciting Pancake Day Competition to celebrate our 40th Anniversary!

Get ready to sizzle, flip, and dazzle with your pancake creations as we invite you to participate in our themed pancake competition, The Great ‘nystagmus’ Pancake Off! We’re looking for pancakes that capture the spirit of our Ruby Year in the most delicious and imaginative ways possible!

 To enter:

  1. Whip up your most innovative pancake masterpiece inspired by our Ruby Year.
  2. Snap a photo of your pancake creation.
  3. Share your photo on social media using the hashtag #RubyPancake and tag @NystagmusNetwork or email it to us at [email protected]

Our esteemed trustees and members will be judging the entries based on creativity, presentation and adherence to the Ruby Year theme. The winners will receive fabulous prizes and, of course, bragging rights as pancake champions!

Whether you’re a seasoned pancake pro or a first-time flipper, everyone is welcome to participate.

Let’s make this Pancake Day one to remember as we celebrate 40 years of supporting people living with nystagmus. Together, let’s spread joy, creativity and deliciousness one pancake at a time!

#RubyPancake @NystagmusUK

Richard stands at a podium and raises his arms in celebration.

The Richard Wilson Essay Prize

The Nystagmus Network is pleased to launch a student essay competition. Open to students of all levels, from undergraduate to post-doctorate, in the fields of Ophthalmology, Optometry and Orthoptics, currently studying or working at UK institutions.

First Prize: £500, the opportunity to present at the Nystagmus Network International Nystagmus Symposium 2024 in June and an invitation to the charity’s Ruby Year celebration at the House of Lords in November.

Second Prize: £200 and the opportunity to present at the Nystagmus Network International Nystagmus Symposium 2024 in June

Third Prize: £100

All three prize winners’ essays will be published on the Nystagmus Network website.

The competition is inaugurated in honour of Richard Wilson OBE, former Chair of Trustees of the Nystagmus Network who sadly passed away in 2023. The prize will be presented by Richard’s widow, Mrs Jackie Wilson on behalf of the charity at a VIP celebration event in London.

Full details of the competition, including how to apply, this year’s essay topic, the judges and the all-important deadline can be found on the Nystagmus Network website here.

Contact details for the Nystagmus Network

email:     [email protected]

Tel:         01427 718093

web:       www.nystagmusnet.org     

 

 

Harry reads his Raindrops story

Harry’s story for Raindrops

This is Harry. Harry is 9 years old. He’s just written his story for the Raindrops story writing competition. It’s about Raindrops and what they make him think of.

Well done, Harry.

We look forward to reading yours and all the other stories in the fabulous Raindrops story book to be published later this year.

Raindrops competition details here

A postcard to advertise virtual Open Day on 3 October, showing a selection of images of the highlights to come.

Nystagmus doesn’t stop me …

The theme of the Nystagmus Network virtual Open Day 2020 is the phrase ‘Nothing will stop us!”

That’s because we believe that nystagmus needn’t stop you from doing (almost) anything you want to do.

So this month we’re running our Open Day 2020 COMPETITION!

To enter, all you have to do is show us what nystagmus doesn’t stop you from doing. Your competition entry can take any form you like. It can be

a poem

a short story

a photograph

a drawing

a voice recording

a video clip

Send your entry with your name, age (if under 16) and the message “Nystagmus doesn’t stop me …” to [email protected] by no later than Saturday 31 October. The best entries will feature on our website and on our social media.

A postcard to advertise virtual Open Day on 3 October, showing a selection of images of the highlights to come.

Nothing will stop us!

The theme of the Nystagmus Network virtual Open Day 2020 is the phrase ‘Nothing will stop us!”

That’s because we believe that nystagmus needn’t stop you from doing (almost) anything you want to do.

So today we’re launching our Open Day 2020 COMPETITION!

To enter, all you have to do is show us what nystagmus doesn’t stop you from doing. Your competition entry can take any form you like. It can be

a poem

a short story

a photograph

a drawing

a voice recording

a video clip

Send your entry with your name, age (if under 16) and the message “Nystagmus doesn’t stop me …” to [email protected] by no later than Saturday 31 October. The best entries will feature on our website and on our social media.

Enter the competition here

Nystagmus Awareness Day 2020

We may all be staying at home, but we can still mark national and international Nystagmus Awareness Day. Here are just some of the ways you can get involved.

How amazing are you?

In the run up to Nystagmus Awareness Day 2020, we are once again asking you to share your amazing nystagmus success stories. Not only do these stories help raise awareness of nystagmus, but they also bring hope to so many parents whose children have just been diagnosed. In previous years we’ve heard some truly amazing stories of success or achievement despite, or maybe even because of, having nystagmus. Let’s make 2020 even more amazing!

Email your amazing nystagmus stories, plus photo, please, to [email protected].

Our wobbly photography competition

We want to raise as much awareness of nystagmus as possible this year and make sure that everyone has a chance to take part, so we’re running our wobbly photography competition: The View From My Window

We know that lots of people who have nystagmus are also keen photographers. Whether you have nystagmus or not, whether you have the latest camera or just a phone, and wherever you are in the world, you can take part.

Details coming soon

Our wobbly Quiz

The Nystagmus Network is running a Virtual Quiz Night every Saturday at 7pm throughout lockdown. On Nystagmus Awareness Day, 20 June, the quiz promises to be our biggest and best yet. There are cash prizes for 1st, 2nd and 3rd places. So what are you waiting for? Get everyone signed up now!

Sign up for the quiz here

Nystagmus is 

Our fabulous new publication, Nystagmus is …, inspired by the wonderful Roger, will be launched on Nystagmus Awareness Day 2020. The booklet is full of contributions from people who have nystagmus, describing how they feel about it and how it affects their lives. For the first time people can read what it’s really like to have nystagmus by the people who really know.

Nystagmus is … will be available FREE from our online shop on 20 June 2020, but you can pre-order your copy NOW. Simply email us at [email protected].

Home school for Nystagmus Awareness Day

We have loads of teaching and learning materials available to help mark Nystagmus Awareness Day. There are posters to colour, bunting to make, a PowerPoint presentation, a lesson plan and our booklet especially for children ‘Wobbly Eyes”.

Find your free to download materials here

Lockdown fundraisers

Lockdown doesn’t stop us! Don’t let it stop you! Especially not on Nystagmus Awareness Day!

Find out about our lockdown fundraisers here

Why do we need Nystagmus Awareness Day?

Here at the Nystagmus Network we raise awareness of the condition every single day of the year, because we believe that the more people who know about it the better. It means that adults and children who have nystagmus will get the help, support and services they need in education, employment, health, mobility and leisure and everyone affected will enjoy a better quality of life.

Holding a national and international Nystagmus Awareness Day serves as a reminder to everyone that we are here and our voices need to be heard. Every time you take part in Nystagmus Awareness Day or tell someone what you’re doing and why, that’s one more person who understands what nystagmus is.

Every pound you raise or donate helps the Nystagmus Network support our research teams across the UK to investigate this hugely complex condition, to find better diagnosis, treatments and continue to work towards prevention and cure.

Please take part in Nystagmus Awareness Day 2020

Thank you for your support

Our Christmas photo competition

Following the success of the Nystagmus Network photography competition in 2017 in honour of our former trustee, the late Steve McKay, we’ve decided to launch a Christmas 2018 photo competition.

The winning photograph will feature on our 2019 Christmas cards.

Entrants can be any age. They must have nystagmus themselves or be the close relative of someone who does.

To enter the competition please submit 1 high resolution image only, which must be your own work. The subject matter is simply Christmas.

Please email your photograph, by no later than Thursday 31 January to [email protected].

To give you an idea of the standard of photography, you can review our previous finalists’ pictures here …

Photography competition 2017 entries
Go to this Sway

The picture above is the 2017 winning photograph by Hanna. The subject last time was not Christmas, but the ‘built environment’.

Please vote for Ben

Ben Haynes is a talented young musician who just happens to have albinism and nystagmus. Ben has entered a music competition and needs your vote. We’ll let Ben explain …

Hi everyone. I’m a self employed musician from Nottingham with Albinism and Nystagmus. I performed a few songs at the Nystagmus Network Open day in Newcastle back in 2015.

I was hoping to ask you all a favour …

So I’m in this competition called Future Sound of Nottingham. I’m one of twelve semi-finalists. The winner gets to play Rock City (iconic venue) and then potentially, Splendour festival. Splendour is one of the biggest events in Nottingham. Here’s a link to the song I submitted.

In fear of sounding like a politician, do I have your vote??

VOTE HERE

You will be asked to provide both your email and mobile number. This is to ensure people don’t vote multiple times.

Once you’ve voted, please share with friends and family. Tagging people on social media is a great way to spread the word.

Thank you for your support X