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Nystagmus Network

Supporting people living with nystagmus

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Videos

Become a member of the Nystagmus Network


As a small charity, the Nystagmus Network relies heavily on regular income from membership subscriptions. Over the years our membership has steadily grown and at the same time the cost … Continue reading Become a member of the Nystagmus Network

Format VideoPosted on January 27, 2017Author Daniel LewiCategories PostsTags charity, membership, video

Merry Christmas everyone!


Merry Christmas everyone! It’s been a very busy year at the Nystagmus Network with lots taking place! Our Chairman Richard has a short Christmas message he would like to share … Continue reading Merry Christmas everyone!

Format VideoPosted on December 22, 2016January 5, 2017Author Daniel LewiCategories Charity highlights, PostsTags chairman, christmas, nystagmus

Steve McKay announcement


It is with great sadness that we announce the sudden and unexpected death of Trustee Steve McKay from Newton Abbot in Devon.  Steve suffered a tragic road accident on Thursday … Continue reading Steve McKay announcement

Format VideoPosted on December 16, 2016Author Daniel LewiCategories Charity highlights, PostsTags nystagmus, nystagmus network, steve mckay

An overview of the The UK Eye Genetics Group Conference 2016


This weeks video blog features Dan giving an overview of the recent UK Eye Genetics Group Conference which was held on the 25th November. The Nystagmus Network was a sponsor … Continue reading An overview of the The UK Eye Genetics Group Conference 2016

Format VideoPosted on December 1, 2016December 7, 2016Author Daniel LewiCategories Charity highlights, PostsTags conference, nystagmus, video blog

Why is Wobbly Wednesday so important? Watch and find out!


Our latest video for our blog introduces Wobbly Wednesday, the annual awareness raising day for nystagmus! The video features some of our trustees, including our founder and chairman explaining why … Continue reading Why is Wobbly Wednesday so important? Watch and find out!

Format VideoPosted on November 2, 2016Author Daniel LewiCategories Fundraising, Living with nystagmus, PostsTags nystagmus, video blog, wobbly wednesday

No limits


This week the video blog at the Nystagmus Network features the amazing Josh!   Josh is a keen skier who loves to take part in ski competitions. However, he was … Continue reading No limits

Format VideoPosted on September 29, 2016October 4, 2016Author Daniel LewiCategories Living with nystagmus, PostsTags child, nystagmus, skiing, sport

Tom and his new class at school


Our latest video blog features an interview with one of our young members! In the video Tom talks about starting his new class at school and how he is a … Continue reading Tom and his new class at school

Format VideoPosted on September 15, 2016September 12, 2016Author Daniel LewiCategories Living with nystagmusTags child, nystagmus, story

Fundraising for the Nystagmus Network


Our latest video blog features an interview by our very own Sue with two of the charity’s fundraisers! Gavin and Paula Birch recently held a fun day and football match … Continue reading Fundraising for the Nystagmus Network

Format VideoPosted on September 1, 2016September 1, 2016Author Daniel LewiCategories Charity highlights, Fundraising, Living with nystagmus, PostsTags fundraising, nystagmus

Nystagmus and photography


Our third video blog has been recorded by Steve McKay who is a trustee at the Nystagmus Network! During the video Steve talks about how he took up photography and … Continue reading Nystagmus and photography

Format VideoPosted on August 24, 2016September 1, 2016Author Categories Living with nystagmus, PostsTags blog, hobby, photography

Sue’s journey at the Nystagmus Network


Our second video blog has been recorded by Sue Ricketts. Sue has been involved with the Nystagmus Network for many years and joined the charity as the Communication and Development … Continue reading Sue’s journey at the Nystagmus Network

Format VideoPosted on August 4, 2016September 1, 2016Author Sue RickettsCategories Charity highlights, PostsTags blog, highlight, nystagmus, video

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