We started national and international Nystagmus Awareness Day, also known as Wobbly Wednesday, back in 2013. But every Wednesday is awareness day on our Facebook page.
This means you can talk about any aspect of nystagmus you choose and ask any questions you like. This is your forum to talk about everything to do with nystagmus.
We will, of course, be celebrating the actual Nystagmus Awareness Day later in the year. See today’s further blog post for exciting news about this year’s theme!
The Nystagmus Network is delighted to post some exciting news. In 2018 we are declaring 20 June the new permanent date for Nystagmus Awareness Day.
Since 2013, we have celebrated Wobbly Wednesday in November, but in 2018 it will be in the summer and 18 to 24 June will be a Wobbly Week.
In future years 20 June will not always fall on a Wednesday of course, but for those with a love of alliteration, there will always be the opportunity to celebrate a Wobbly Wednesday within the Wobbly Week containing 20 June.
To mark this change and encourage as much participation as possible, we will be raising awareness of nystagmus under the banner ‘we need to talk about nystagmus’ and encouraging everyone to make the most of the time of year by getting outside to raise awareness and fundraise, with the theme ‘nystagmus in the open’.
Please watch our blog and social media posts for further news.
This week the video blog at the Nystagmus Network features our very own Sue!
The video is her interview with Peterborough Community Radio which is hosted by one of our very loyal and long standing supporters Tim Heywood. Sue and Tim discuss the Nystagmus Network, nystagmus and Wobbly Wednesday.
Our latest video for our blog introduces Wobbly Wednesday, the annual awareness raising day for nystagmus!
The video features some of our trustees, including our founder and chairman explaining why the Nystagmus Network is so important.
On Saturday 29 October young Research Orthoptist, Daniel Osborne, kicked off a whole raft of Wobbly Wednesday activities at the Southampton Eye Unit in real style by riding a 12 mile route around the town on his unicycle.
Fuelled by dates, flap jack, fed to him at regular intervals by his stalwart outrider, Kathryn Greenhalgh, who rode the entire distance with him on a bicycle, as well as a desire to help idiopathically visually impaired children, Dan cycled from Winchester to Southampton to raise money for the Nystagmus Network and awareness of nystagmus. His journey covered some 20km and took just under 3.5 hours.
Dan sends out a special thank you to everyone who met him at the finish line and a very big thanks to everyone who has donated to his Just Giving page. So far Dan has already raised almost £500 but the page is still open so anyone wishing to donate can do so here https://www.justgiving.com/fundraising/Daniel-Osborne5
There will be lots more Wobbly Wednesday events happening in the Eye Unit this week, so why not go along to join in the fun alongside the Nystagmus Network’s Chairman, Richard Wilson, if you’re in the area.
Our video this week focuses on Wobbly Wednesday and why your support is so important! It helps us raise awareness of nystagmus and make it the topic of discussion for the day.
With just four months to go until the biggest day of the nystagmus calendar, Wobbly Wednesday 2016, it’s time to launch our brand new campaign – “What will you Wobble?”
All you have to do is think of something that wobbles – it’s not that tricky.
You could have a wobbly tooth, or you might wobble when you try to walk in high heeled shoes. Then there’s the Millennium Bridge in London. That was pretty wobbly for a while. There are lots of toys that are wobbly. What about your favourite Subbuteo football team or Weebles – they wobble!
So now we’ve got you thinking about the best thing to wobble, the next step is to take a photo or video clip and send it in to us here or upload it to social media with the #wobblywednesday hashtag.
We are asking everyone who takes part in our “What will you Wobble?” campaign to make a donation to the charity and to use the text below when sharing their photo or video clip.
As part of the “What will you Wobble?” campaign the charity will choose the best video and photo. The winners will recieve a small prize!
If you are in need of some inspiration to take part in the “What will you Wobble?” campaign there will be lots of ideas and things to download from the special Wobbly Wednesday page on our website very soon.
We’ll be posting all the best pictures and details of all the best events planned here too, so please keep looking and check if there is something in your area you can join in with.
We look forward to everyone getting involved with Wobbly Wednesday!
