Tag: skiing
VI skiing this Bank Holiday weekend!
We’re delighted to confirm another opportunity to ski with the Nystagmus Network and the Outspan Rebels VI ski team. On Sunday 26th August we will be running a two-hour ski lesson … Continue reading VI skiing this Bank Holiday weekend!
Did you come to Snow Camp?
It was a fantastic event. There were so many amazing people there to inspire adults and children to get out on the slopes and enjoy the snow. David Katz was … Continue reading Did you come to Snow Camp?
Menna and Jen are coming to Snow Camp!
The first Nystagmus Network Snow Camp of 2018 takes place this Sunday, 17 June, at Snozone Milton Keynes. Lots of families have signed up to enjoy a day of sledging … Continue reading Menna and Jen are coming to Snow Camp!
Snow Camp VIPs
If you’ve signed up for the first Snow Camp of 2018, on 17 June, here’s a little taster of what to expect on the day. There’ll be skiing and sledging … Continue reading Snow Camp VIPs
Nystagmus Awareness Day – for snow men!
Whilst we are all looking forward to the very first Nystagmus Awareness Day in the summer – on Wednesday 20 June – for those of you who miss the old … Continue reading Nystagmus Awareness Day – for snow men!
Nystagmus Network Snow Camps 2018
Thanks to Outspan Rebels team founder, Jamie Fuller, who has managed to secure sponsorship from the Snow Sports Foundation, there will be two Nystagmus Network Snow Camps this summer. These … Continue reading Nystagmus Network Snow Camps 2018
The Outspan Rebels VI ski team
Jamie and Josh Fuller are well known in the nystagmus community as the father and son team who delivered an inspirational presentation at Open Day last September. Jamie organised the … Continue reading The Outspan Rebels VI ski team
Sign up to ski!
We are delighted to announce the final dates and times for our skiing taster sessions for members of the Nystagmus Network! There are three different venues offering the group sessions … Continue reading Sign up to ski!
Do you want to ski like Josh?
Our son Joshua was born with oculo-cutaneous albinism in 2003. It was a surprise to both our families as no one on either side had any recollection of anyone in … Continue reading Do you want to ski like Josh?