There’s nothing quite like the feeling of belonging, of knowing that you’re part of a wider virtual nystagmus community and among friends, all working for the same goals as you. That’s why the Nystagmus Network is a membership organisation. The more people we represent who are living with nystagmus, or have an interest in the … Continue reading Thinking of becoming a member?
A Christmas message from Tim
Nystagmus Network Chairman, Tim Cuddeford has sent a Christmas message to members of the Nystagmus Network. Tim spoke of the challenges that 2020 has brought for everyone, not least the nystagmus community, but also highlighted the successes the charity has been able to achieve, thanks to the support of our intrepid fundraisers and donors and … Continue reading A Christmas message from Tim
Membership subscriptions increase from 1 April
No one here at the Nystagmus Network can actually remember the last time there was an increase in our annual membership subscriptions. That means it must have been at least a decade ago. But with the charity’s work and reach expanding all the time as we seek to meet the needs of an ever growing … Continue reading Membership subscriptions increase from 1 April
Can I tell you about nystagmus?
The Nystagmus Network is delighted to share news of the launch today of a brand new book about nystagmus. Written by Nadine Neckles, the book looks at nystagmus from a child’s point of view and provides insights for parents and professionals alike. Nadine is a friend of the Nystagmus Network and previously contributed an article … Continue reading Can I tell you about nystagmus?
Are you a member?
There’s nothing quite like the feeling of belonging, to know that you’re part of a community and among friends, all working for the same goals as you. That’s why the Nystagmus Network is a membership organisation. The more people we represent who are affected by nystagmus, or have an interest in the condition, the better … Continue reading Are you a member?
Have you got our new number?
The registered charity number for the Nystagmus Network has changed. Our new number is 1180450. This marks our successful transition from humble charity to a Charitable Incorporated Organisation, as voted for by our members at our AGM in September. Only our number has changed. We remain a membership organisation serving the needs of the nystagmus … Continue reading Have you got our new number?
Education information for all
Have you visited our online Education Resource HUB? You’ll find everything you need to know about supporting a child through education, as a parent, carer or teacher, from the early years right through to college and beyond. We also offer an education advocacy service to members. Visit the HUB here.
Free benefits information
Information on nystagmus, DLA and PIP is available free of charge directly from our website to anyone who needs it. Download here. Individual support from our volunteer benefits adviser is available to members of the charity.
Never a better time to join
Joining the Nystagmus Network as a member means becoming part of the biggest nystagmus patient group in Europe. Alongside all the other benefits of membership, TODAY ONLY new members also receive 10 FREE Nystagmus Network Christmas cards, worth £5. There’s never been a better time to join us. JOIN US HERE
Open Day 2018 – booking open soon
We are just finalising details of our annual Open Day 2018. We shall once again be in central Birmingham. The date is Saturday, 29 September. The venue is the same as last year, the MacDonald Burlington Hotel, across the road from Grand Central. We already have some very exciting speakers lined up. We will also … Continue reading Open Day 2018 – booking open soon