There are bound to be loads of bake sales for Nystagmus Awareness Day 2018 on 20 June, so we thought it would be a great idea to have some Nystagmus … Continue reading Caaaaaaaaaaaake!!!
Author: Sue Ricketts
Snow Camp VIPs
If you’ve signed up for the first Snow Camp of 2018, on 17 June, here’s a little taster of what to expect on the day. There’ll be skiing and sledging … Continue reading Snow Camp VIPs
Congratulations Peter and Sam
Nystagmus Network trustees Peter Greenwood and Sam Jones completed the London Vitality 10k on Bank Holiday Monday and raised over £1,000 between them for the charity. Nystagmus Network Chairman, Richard … Continue reading Congratulations Peter and Sam
Please vote for Ben
Ben Haynes is a talented young musician who just happens to have albinism and nystagmus. Ben has entered a music competition and needs your vote. We’ll let Ben explain … … Continue reading Please vote for Ben
You could win £450 for the Nystagmus Network
SMALL CHARITY WEEK begins on Monday 18 June. If the Nystagmus Network is your favourite small charity, why not enter the Facebook, Twitter or Instagram competition to help us win … Continue reading You could win £450 for the Nystagmus Network
Manchester half marathon places available
Would you like to run the Manchester half marathon this October to raise money for the Nystagmus Network? The race takes places on Sunday 14 October. It starts and finishes by … Continue reading Manchester half marathon places available
Sam to run London 10k for the Nystagmus Network
Sam Jones, Nystagmus Network trustee and runner, introduces himself. I was born in 1983 with Cone Dysfunction and Nystagmus. Because of me, my mother, Vivien Jones, founded the Nystagmus Network. … Continue reading Sam to run London 10k for the Nystagmus Network
Nystagmus Network article published
To achieve our objective of raising greater awareness of nystagmus, the charity publishes articles from time to time on different aspects of the condition. The article we submitted for publication … Continue reading Nystagmus Network article published
Sponsors sought for Open Day 2018
The biggest nystagmus event of the year takes place on Saturday, 29 September in Birmingham. This is our annual Open Day, where 200 nystagmus families get together to talk about … Continue reading Sponsors sought for Open Day 2018
Open Day 2018 – members only tickets available from 28 June
Priority booking for free places at our Open Day 2018 will open to members of the Nystagmus Network at midday on Thursday 28 June. Remaining tickets will go on general … Continue reading Open Day 2018 – members only tickets available from 28 June