Nystagmus Network trustees Peter Greenwood and Sam Jones completed the London Vitality 10k on Bank Holiday Monday and raised over £1,000 between them for the charity. Nystagmus Network Chairman, Richard … Continue reading Congratulations Peter and Sam
Ben Haynes is a talented young musician who just happens to have albinism and nystagmus. Ben has entered a music competition and needs your vote. We’ll let Ben explain … … Continue reading Please vote for Ben
SMALL CHARITY WEEK begins on Monday 18 June. If the Nystagmus Network is your favourite small charity, why not enter the Facebook, Twitter or Instagram competition to help us win … Continue reading You could win £450 for the Nystagmus Network
Would you like to run the Manchester half marathon this October to raise money for the Nystagmus Network? The race takes places on Sunday 14 October. It starts and finishes by … Continue reading Manchester half marathon places available
Sam Jones, Nystagmus Network trustee and runner, introduces himself. I was born in 1983 with Cone Dysfunction and Nystagmus. Because of me, my mother, Vivien Jones, founded the Nystagmus Network. … Continue reading Sam to run London 10k for the Nystagmus Network
To achieve our objective of raising greater awareness of nystagmus, the charity publishes articles from time to time on different aspects of the condition. The article we submitted for publication … Continue reading Nystagmus Network article published
The biggest nystagmus event of the year takes place on Saturday, 29 September in Birmingham. This is our annual Open Day, where 200 nystagmus families get together to talk about … Continue reading Sponsors sought for Open Day 2018
Priority booking for free places at our Open Day 2018 will open to members of the Nystagmus Network at midday on Thursday 28 June. Remaining tickets will go on general … Continue reading Open Day 2018 – members only tickets available from 28 June
Fight for Sight has today announced a call for Small Grant Award applications. The UK’s leading eye research charity is this year able to offer thirteen awards to fund sight … Continue reading Fight for Sight partners with the Nystagmus Network for its next grant round
At 12 midday on Wednesday 20 June, Nystagmus Awareness Day, we can get the whole world talking about nystagmus across Facebook and Twitter. All you need to do to take … Continue reading Sign up for the “Nystagmus in the Open” thunderclap!
