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Author: Sue Ricketts

Nystagmus Network article published


To achieve our objective of raising greater awareness of nystagmus, the charity publishes articles from time to time on different aspects of the condition. The article we submitted for publication … Continue reading Nystagmus Network article published

Posted on May 22, 2018Author Sue RickettsCategories Information and Support, Living with nystagmusTags article, awareness, children, nystagmus, publications, Wobbly Eyes

Sponsors sought for Open Day 2018


The biggest nystagmus event of the year takes place on Saturday, 29 September in Birmingham. This is our annual Open Day, where 200 nystagmus families get together to talk about … Continue reading Sponsors sought for Open Day 2018

Posted on May 8, 2018Author Sue RickettsCategories Events, Open Day 2018Tags nystagmus, nystagmus network, Open Day, sponsorship

Open Day 2018 – members only tickets available from 28 June


Priority booking for free places at our Open Day 2018 will open to members of the Nystagmus Network at midday on Thursday 28 June. Remaining tickets will go on general … Continue reading Open Day 2018 – members only tickets available from 28 June

Posted on May 4, 2018Author Sue RickettsCategories Open Day 2018Tags members, priority

Fight for Sight partners with the Nystagmus Network for its next grant round


Fight for Sight has today announced a call for Small Grant Award applications. The UK’s leading eye research charity is this year able to offer thirteen awards to fund sight … Continue reading Fight for Sight partners with the Nystagmus Network for its next grant round

Posted on May 1, 2018Author Sue RickettsCategories researchTags Fight for Sight, nystagmus, quality of life, research grants

Sign up for the “Nystagmus in the Open” thunderclap!


At 12 midday on Wednesday 20 June, Nystagmus Awareness Day, we can get the whole world talking about nystagmus across Facebook and Twitter. All you need to do to take … Continue reading Sign up for the “Nystagmus in the Open” thunderclap!

Posted on May 1, 2018Author Sue RickettsCategories Charity highlights, Events, Nystagmus Awareness DayTags Facebook, thunderclap, Twitter

Sue attends APPG meeting on eye research


Sue attended a meeting yesterday at the House of Commons of the All Party Parliamentary Group for Eye Health and Visual Impairment. The subject of the meeting was eye research. … Continue reading Sue attends APPG meeting on eye research

Posted on April 26, 2018Author Sue RickettsCategories researchTags nystagmus, nystagmus research
A child swimming underwater.

How amazing are you?


Have you done something amazing, something you never thought possible, because you have nystagmus? Has your child exceeded all your expectations? If so, we want to hear from you. Last … Continue reading How amazing are you?

Posted on April 26, 2018May 4, 2018Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness DayTags adult, amazing nystagmus success stories, children, fundraising, living with nystagmus, nystagmus

Nystagmus in the open and the Big Blind Walk


On national and international Nystagmus Awareness Day, Wednesday 20 June, why not help us really get ‘nystagmus in the open‘ by joining Julian Jackson on one of the final legs … Continue reading Nystagmus in the open and the Big Blind Walk

Posted on April 18, 2018Author Sue RickettsCategories Charity highlights, Events, Fundraising, Nystagmus Awareness DayTags awareness, Big Blind Walk, nystagmus, nystagmus in the open, research
People stand at a clinic reception holding Nystagmus Network balloons.

Nystagmus Awareness Day – for clinics


Please help us to promote national and international Nystagmus Awareness Day, on Wednesday 20 June, in clinics and hospitals all over the UK and the world. We have free to … Continue reading Nystagmus Awareness Day – for clinics

Posted on April 18, 2018Author Sue RickettsCategories Events, Fundraising, Information and Support, Nystagmus Awareness DayTags awareness, clinics, hospitals, living with nystagmus, nystagmus, support
Children sit around a mat interacting with their teacher.

Nystagmus Awareness Day – for schools


Schools can take part in Nystagmus Awareness Day, especially if there is a pupil who has nystagmus. Talking about nystagmus, celebrating ‘nystagmus in the open‘ will help us raise awareness … Continue reading Nystagmus Awareness Day – for schools

Posted on April 18, 2018Author Sue RickettsCategories Nystagmus Awareness DayTags awareness, fundraising, nystagmus, schools

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