Author: Sue Ricketts

Moorfield’s latest nystagmus research in children

A research team at Moorfield’s Eye Hospital in London, headed by Maria Theodourou, is conducting an investigation into how the vision and nystagmus develop in young children.

Until the end of 2017 they are looking to recruit infants and young children (up to 3 years of age) with idiopathic nystagmus to take part. So, provided your child does not have a known cause for their nystagmus, they may be eligible.
The study will involve checking your child’s vision at a Moorfield’s clinic in London, testing for glasses (refraction) and assessing whether your child’s eyes are straight or whether they have a squint. They will also take recordings of your child’s eye movements, using a video camera, while he or she is sitting on your lap watching a large screen. This typically takes 20-30 minutes.

If you are interested in participating, or would like to find out more, please complete the form below. Thank you.

 

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Sue’s journey at the Nystagmus Network

Our second video blog has been recorded by Sue Ricketts. Sue has been involved with the Nystagmus Network for many years and joined the charity as the Communication and Development Manager in 2015.

In the vide Sue talks about her involvement with the charity and how she has seen it grow in strength over the last twenty years!

Remember to keep checking back for the latest post!

Wobbly Wednesday 2nd November 2016 – What will you Wobble?

With just four months to go until the biggest day of the nystagmus calendar, Wobbly Wednesday 2016, it’s time to launch our brand new campaign – “What will you Wobble?”

All you have to do is think of something that wobbles – it’s not that tricky.

You could have a wobbly tooth, or you might wobble when you try to walk in high heeled shoes. Then there’s the Millennium Bridge in London. That was pretty wobbly for a while. There are lots of toys that are wobbly. What about your favourite Subbuteo football team or Weebles – they wobble!

Getting involved

So now we’ve got you thinking about the best thing to wobble, the next step is to take a photo or video clip and send it in to us here or upload it to social media with the #wobblywednesday hashtag.

Make a donation and raise awareness

We are asking everyone who takes part in our “What will you Wobble?” campaign to make a donation to the charity and to use the text below when sharing their photo or video clip.

I’m wobbling for #wobblywednesday!
Text NYST77 £5 to 70070 and wobble for #nystagmus!

Win a prize!

As part of the “What will you Wobble?” campaign the charity will choose the best video and photo. The winners will recieve a small prize!

Inspiration?

If you are in need of some inspiration to take part in the “What will you Wobble?” campaign there will be lots of ideas and things to download from the special Wobbly Wednesday page on our website very soon.

We’ll be posting all the best pictures and details of all the best events planned here too, so please keep looking and check if there is something in your area you can join in with.

We look forward to everyone getting involved with Wobbly Wednesday!