Our advent calendar of Christmas gifts

Throughout December the Nystagmus Network will be reminding everyone just how many wonderful gifts of support and information the charity has to offer, not just at Christmas, but throughout the year.

Each day a new gift will pop up in your nystagmus advent calendar on our blog, on Facebook and on Twitter. Please share these with your friends, family and colleagues and ask them to give just a little back this Christmas if they can.

Please also share our Nystagmus is … this Christmas messages.

Thank you for your support

Welcome to our honorary members

On Giving Tuesday, to say thank you and as a mark of our appreciation of their support, we’ve invited our top 20 fundraisers of 2018, who were not already members, to join the Nystagmus Network as members in 2019.

Are you one of the chosen ones?

We are delighted that they have agreed to accept. Here’s what our new alumni have been saying:

“I am honoured to be an honorary member.”

“This has absolutely made my day and I’m so very honoured to be thought of.”

“That is wonderfully kind. I would love to get closer to your great work.”

“I think it’s so important to get together, share ideas and discuss experiences, especially for parents of children with nystagmus.”

You can join as a member, too. Please click here.

What’s on your bucket list for 2019?

Fancy a doing a sponsored sky dive for the Nystagmus Network?

We’ve teamed up with UK Skydiving Adventures to offer you locations all around the country to make your leap for nystagmus an we’ll be here to support you every step of the way.

Don’t forget to let us know where and when and we’ll be sure to help you reach as many potential sponsors as possible.

 

Tim Cuddeford

Run with Tim

Nystagmus Network trustee, Tim Cuddeford, will be running the London Vitality 10k for the charity on 27 May next year.

If you’d like to run with Tim, we have a limited number of FREE places available. To qualify, all you need to do is:

  • have a close connection with nystagmus or have the condition yourself
  • be willing to set up a Justgiving page for your sponsors
  • commit to raise at least £250

If you’d like to run for the Nystagmus Network, please contact us today.

Thank you

 

Run the Royal Parks for Nystagmus Network

The 2019 Royal Parks Half Marathon will take place on Sunday, 13 October 2019. Billed as one of the country’s most picturesque routes, the run takes in some major London landmarks as well as the beautiful autumnal colours of the parks at that time of year.

This year Clare ran for Jessica. Read her story here.

Interested?

You will need to:

  • have a close connection with nystagmus or have the condition yourself
  • be willing to set up a Justgiving page for your sponsors
  • commit to raise at least £250

If you would like to run for the Nystagmus Network, please contact us today.

Send Nystagmus Network e-cards this Christmas

Did you know that you can now send a Nystagmus Network e-card to all your friends and family this Christmas?

Our e-card is exactly the same jolly design (by Ben and Charlotte, Jack and Lilly) as the real cards you can buy in our online shop. The only difference is that you don’t have to post an e-card! We do that for you, by email!

All we ask is that you make a donation equivalent to the cost of actual cards and all those stamps. Thank you!

Click here to send your e-cards