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The Nystagmus Network provides much needed information for parents of newly diagnosed children and babies . We understand that this is a very difficult time and that there is sometimes not very much information available. Our free to download Parents Booklet provides a clear introduction to the condition and gives parents an idea of what … Continue reading Information for Parents
Whether you’ve had nystagmus all your life or have acquired it more recently, the Nystagmus Network is here to support adults with the condition, with information, research updates, news, meetings, membership and more. Or why not get involved with one of our fundraising activities?
The Nystagmus Network is pleased to be able to bring you so many real life nystagmus stories, thanks to the thoughtfulness and generosity of members of the nystagmus community. Today we bring you Mélissa’s story.
Great for inclusion and awareness raising, the Nystagmus Network has free to download materials for schools. Don’t see what you need – please ask us. Download your free resources here.
Our very first regional nystagmus network is already up and running in Manchester, hosted by our trustee, Marie. There are lots more local groups to come in 2019, giving more and more people the opportunity to meet up and share information and experiences. If you would like to join one of our new groups, or … Continue reading Our new local groups
Have you visited our online Education Resource HUB? You’ll find everything you need to know about supporting a child through education, as a parent, carer or teacher, from the early years right through to college and beyond. We also offer an education advocacy service to members. Visit the HUB here.
Information on nystagmus, DLA and PIP is available free of charge directly from our website to anyone who needs it. Download here. Individual support from our volunteer benefits adviser is available to members of the charity.
Joining the Nystagmus Network as a member means becoming part of the biggest nystagmus patient group in Europe. Alongside all the other benefits of membership, TODAY ONLY new members also receive 10 FREE Nystagmus Network Christmas cards, worth £5. There’s never been a better time to join us. JOIN US HERE