Information for Parents


The Nystagmus Network provides much needed information for parents of newly diagnosed children and babies . We understand that this is a very difficult time and that there is sometimes not very much information available.  Our free to download Parents Booklet provides a clear introduction to the condition and gives parents an idea of what … Continue reading Information for Parents

Support for adults with nystagmus


Whether you’ve had nystagmus all your life or have acquired it more recently, the Nystagmus Network is here to support adults with the condition, with information, research updates, news, meetings, membership and more. Or why not get involved with one of our fundraising activities?

Our new local groups


Our very first regional nystagmus network is already up and running in Manchester, hosted by our trustee, Marie. There are lots more local groups to come in 2019, giving more and more people the opportunity to meet up and share information and experiences. If you would like to join one of our new groups, or … Continue reading Our new local groups

Education information for all


Have you visited our online Education Resource HUB? You’ll find everything you need to know about supporting a child through education, as a parent, carer or teacher, from the early years right through to college and beyond. We also offer an education advocacy service to members. Visit the HUB here.