Our final advent calendar gift is something we offer every day of the year. Thank you to all our members, fundraisers and supporters who make it all possible.
Happy Christmas!
Nystagmus, the way we see it
If you’ve ever wondered how a person with nystagmus sees or how the condition affects their sight, listen to Richard, Harriet and Will explain in our video.
You can show our video to anyone or use it, completely free of charge, for training purposes. All we ask is that you let us know.
Our staff team
When you contact the Nystagmus Network, by phone, email or on social media, it will be one of our 3 staff members who responds.
Our trustees and our founder, Vivien
Without the dedication of just one woman, Vivien Jones, our Founder and Honorary President, the Nystagmus Network would not exist.
Vivien is supported by a strong team of Trustees, all volunteers.
Find out more about our trustees, here.
Book a talk about nystagmus
Nystagmus Network staff members will visit your clinic, school or group to deliver a talk about nystagmus and the work of the charity.
If we can’t make it in person (there are only 3 of us) we will send you materials for your visitors to take away.
Please contact us today to request a talk.
Free wristbands – today only!
Normally our wristbands are 99p each, but today we’re offering you, as part of our advent calendar, 5 FREE wristbands. you just need to pay £1 to cover p+p.
Order your free leaflets and cards
The Nystagmus Network distributes leaflets, postcards and charity business cards to anyone who needs them to signpost people for support.
Contact us today to order your supply.
Never been to Open Day?
Find out all about the biggest nystagmus event in Europe, here.
Subscribe free to our newsletter
Stay up to date with all the nystagmus news, direct to your inbox every second Thursday.
Information for Parents
The Nystagmus Network provides much needed information for parents of newly diagnosed children and babies . We understand that this is a very difficult time and that there is sometimes not very much information available.
Our free to download Parents Booklet provides a clear introduction to the condition and gives parents an idea of what to expect and how to support their child.