Category: Fundraising

Could you walk from Eye to Eye for nystagmus?

At 11am on Sunday 10 March 2019 we’re planning the biggest nystagmus community get together of the year. Team Nystagmus Network will be taking part in the Eye to Eye Walk between the iconic London Eye on London’s South Bank to the equally famous and symbolic eye sign outside Moorfields Eye Hospital.

Please join us.

We’re doing this to raise much needed funding for ground breaking research into nystagmus at Moorfields and University College, London.

You can choose to take the 4 mile or the 14 mile walk. It’s up to you.

Bring the family, bring the dog and help the nystagmus cause by raising lots of lovely sponsorship.

Registration is now open. It’s free for accompanied children under 16 and is just £20 for the 14 mile route and £15 for the four mile route. We suggest a minimum sponsorship of £100 for every participating adult.

Moorfields will supply:

  • Route maps
  • T-shirts for every participant
  • Fundraising support
  • Refreshments, medal, goodie bag and celebration at the end of the walk at their brand new Ect Venue, (Belvedere Road, London, SE1 7PB) next to the London Eye!

Please sign up today!

True dedication!

Nystagmus Network trustees Claire Brinn and Vicky Pitman and Vicky’s husband, Richard finally completed their abseil for nystagmus research on Sunday, 28 October. They scaled down the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park.

The final 3 of our fabulous team of 10 abseilers finally took their leap for nystagmus, following postponements due to the very British weather.

It was a chilly day, but at least there were no high winds or lashing rain to deter them this time and our courageous trio were all smiles for the camera.

The Nystagmus Network is indebted to all 10 of our abseilers who are all now safely back on the ground: Claire A, Claire B, Glen, Matt, Richard B, Richard P, Tom, Vanessa, Vicki and Vicky. Together they have raised around £7,500 for ground breaking nystagmus research at Moorfields and UCL.

Make us smile – even more!

Thank you to everyone who’s already signed up with AmazonSmile to raise a small donation for the Nystagmus Network every time you order something from Amazon.

For a short time you can generate 10 times the donations to us when you shop on smile.amazon.co.uk.

Until 2 November, AmazonSmile is increasing the donation rate to 5%.

Support Nystagmus Network by starting your shopping at AmazonSmile.

They did it – at last!

The unpredictable British weather finally came good for our intrepid (postponed) abseilers on Sunday 21 September, when Clare A, Glen and Matt finally completed their abseil from the viewing platform of the ArcelorMittal Orbit for nystagmus research.

With not a cloud in the sky nor any hint of wind and rain, our intrepid 3 enjoyed the experience of a lifetime and helped secure the future of ground-breaking nystagmus research at Moorfields and University College, London.

WELL DONE and THANK YOU!

Congratulations all of you. Now you really can say ‘I got the T-shirt!’.

Nerves of steel!

Four of our six remaining Nystagmus Network abseilers will finally (fingers crossed!) make their leap for nystagmus research this Sunday, 21 October, from the viewing platform at the top of the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park.

Vicky, Tom, Vanessa and Richard B managed to complete their abseil last month.

For the remaining Nystagmus Network team members the abseil was postponed last month, and then again earlier this month, due to high winds and heavy rains – not exactly the ideal weather conditions to be dangling by a rope from the UK’s tallest piece of public art.

So we’d just like to say a huge well done to Claire A, Claire B, Glen and Matt, for keeping their nerve and for continuing to raise sponsorship as they waited for their big moment. Every penny raised is going directly into groundbreaking nystagmus research happening right now at Moorfields Eye Hospital and University College, London.

It’s almost here (we hope)!

Everyone at Nystagmus Network will be thinking of you and the whole nystagmus community will be cheering you on.

Richard P and Vicky hope to make their leap for nystagmus on 28 October.

 

2 runners wearing Nystagmus Network show their medals after comleting the Royal Parks Half Marathon

Clare did it for nystagmus and for Jessica

Clare ran the Royal Parks Half Marathon on Sunday 14 October to raise money for the Nystagmus Network in honour of Jessica, who was born with the condition.

The Royal Parks Half is billed as one of the most picturesque runs in the country, but, sadly, the beautiful autumnal colours were a little washed out by the rain.

Undeterred, Clare has raised almost £900 in sponsorship for the charity and made the whole nystagmus community proud.

After her run she said: “At mile 5 I saw someone with Nystagmus who screamed out and made me so emotional I cried till mile 6!”

THANK YOU, CLARE!

You can still sponsor Clare here.

Walk Eye to Eye for nystagmus research

Supporters of the Nystagmus Network and anyone keen to raise money for nystagmus research at Moorfields Eye Hospital and University College, London can now sign up to walk Eye to Eye in March 2019.

The Eye to Eye walk takes a route (you can choose either 4 or 14 miles) from the London Eye on the South Bank of the Thames to the iconic eye sign outside Moorfields Eye Hospital.

Join Team Nystagmus Network for the walk to make sure that every penny you raise in sponsorship goes directly into ground-breaking nystagmus research at Moorfields and UCL.

We’ll be setting off at 11am on Sunday 10 March. Bring the family, bring the dog! Everyone welcome.

Please sign up today!

Design our Christmas card

At Open Day we announced our competition for children to design the Nystagmus Network 2018 Christmas card. Cards will be available to purchase from early November and will help us raise much needed funding for the charity.

Ben and Charlotte, Lilly, Jack and Rowan are our current front runners, but there’s still time for you to enter your design.

Entrants must be aged 5 to 15 years and have nystagmus. Please scan and email your design to [email protected] or post your drawing to:

Nystagmus Network, 15 Robinia Green, Southampton SO16 8EQ

Closing date: Friday 12 October