Please sign up to #easyfundraising and help us raise FREE funds for the Nystagmus Network whenever you’re shopping online.
THIS IS FREE MONEY FOR US!
Our supporters have already raised over £1,000 and it hasn’t cost them a penny!
Plus, when you raise your first £5, easyfundraising will match it!
Please sign-up using our unique link and search for The Nystagmus Network.
It may not stop the wind and rain, but, if you play the Nystagmus Network Weather Lottery, you will feel a little bit warmer inside.
For £1 per week you will be in with the chance to win up to £25,000 AND every penny of profit, after prize money has been paid out, comes directly to the Nystagmus Network.
Please support us and sign up to the Nystagmus Network Weather Lottery today.
Thank you.
Our lovely knitting volunteer, Lynda has just delivered a new supply of Nystagmus Network mascots for our online shop.
Each mascot represents a child who has nystagmus and wears a warm woolly hat and scarf against the stormy weather. Every mascot is individual, just like real children.
All profits from the sales of the mascots go directly to the Nystagmus Network and every mascot sold helps us raise awareness of the condition and gives a child (or an adult!) a woolly friend just like them.
You can order your mascot from our online shop, here.
Thank you, Lynda!
In case you haven’t heard yet, Southampton born, Mike Larcombe, who has CN, set off on his Walk for Wiggly Eyes on 16 December.
Mike is walking the entire length of both islands of New Zealand to raise awareness of nystagmus and funding for nystagmus research.
The Nystagmus Network is one of Mike’s 3 chosen beneficiary charities. The others are Gift of Sight in Southampton and Blind and Low Vision NZ.
The ‘wiggly walk’ is going to take around 3.5 months in all. It’s an incredible undertaking.
Please watch his progress and send Mike your support along the way, if you can, via Facebook or Instagram. The views are amazing!
THANK YOU
Today we have 2 #NystagmusStars for the price of 1! Their Mum says: “These are my two nystagmus stars, Thomas and Ben, who are confident, happy and loving boys.”
Thank you
Missed the Christmas post? No time to write your cards and run to the post box?
No problem!
Thanks to dontsendmeacard.com you can send a Nystagmus Network e-card today!
Phoenix is 12. He has nystagmus and albinism. At a recent parents’ evening his teachers said he is exceeding most of his targets and they had nothing but praise for him. His Mum is very proud of him, too.
Thank you
Following a difficult birth, Ryan has nystagmus and is severely partially sighted. According to his Mum, he’s the funniest, most sensitive little man ever and whoever meets Ryan falls instantly in love with him, because he smiles from the start of the day to the end. She calls him “my number one star, my boy, my fighter and my son … Ryan.”
Thank you
Harley may have nystagmus, but her inner strength and courage mean she can achieve anything.
Thank you
No matter how difficult life gets for Tommy, he’s always happy. He has nystagmus and another medical condition, but he never lets life get him down.
Thank you
