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Nystagmus Network

Supporting people living with nystagmus

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Category: Fundraising

A box of knitted mascots.

Thank you, Lynda


Our lovely knitting volunteer, Lynda has just delivered a new supply of Nystagmus Network mascots for our online shop. Each mascot represents a child who has nystagmus and wears a … Continue reading Thank you, Lynda

Posted on February 19, 2020February 19, 2020Author Sue RickettsCategories FundraisingTags mascots, nystagmus awareness, online shop
Mike wears his Nystagmus Network T short and smiles for the camera

Mike’s a Nystagmus Super Hero


In case you haven’t heard yet, Southampton born, Mike Larcombe, who has CN, set off on his Walk for Wiggly Eyes on 16 December. Mike is walking the entire length of both … Continue reading Mike’s a Nystagmus Super Hero

Posted on January 7, 2020January 7, 2020Author Sue RickettsCategories Fundraising, Nystagmus heroesTags Mike Larcombe, Walk for Wiggly Eyes

Thomas and Ben are #NystagmusStars


Today we have 2 #NystagmusStars for the price of 1! Their Mum says: “These are my two nystagmus stars, Thomas and Ben, who are confident, happy and loving boys.”  To … Continue reading Thomas and Ben are #NystagmusStars

Posted on December 22, 2019December 20, 2019Author Sue RickettsCategories Fundraising, Living with nystagmusTags #NystagmusStars, Christmas stars

E-cards from the Nystagmus Network


Missed the Christmas post? No time to write your cards and run to the post box? No problem! Thanks to dontsendmeacard.com you can send a Nystagmus Network e-card today! Click … Continue reading E-cards from the Nystagmus Network

Posted on December 22, 2019December 10, 2019Author Sue RickettsCategories FundraisingTags Christmas cards

Phoenix is a #NystagmusStar


Phoenix is 12. He has nystagmus and albinism. At a recent parents’ evening his teachers said he is exceeding most of his targets and they had nothing but praise for … Continue reading Phoenix is a #NystagmusStar

Posted on December 21, 2019December 20, 2019Author Sue RickettsCategories Fundraising, Living with nystagmusTags #NystagmusStars, Christmas stars

Ryan is a #NystagmusStar


Following a difficult birth, Ryan has nystagmus and is severely partially sighted. According to his Mum, he’s the funniest, most sensitive little man ever and whoever meets Ryan falls instantly … Continue reading Ryan is a #NystagmusStar

Posted on December 20, 2019December 20, 2019Author Sue RickettsCategories Fundraising, Living with nystagmusTags #NystagmusStars, Christmas stars

Harley is a #NystagmusStar


Harley may have nystagmus, but her inner strength and courage mean she can achieve anything. To nominate your #NystagmusStar or to make a donation to help the Nystagmus Network support … Continue reading Harley is a #NystagmusStar

Posted on December 18, 2019December 18, 2019Author Sue RickettsCategories Fundraising, Living with nystagmusTags #NystagmusStars, Christmas stars

Tommy is a #NystagmusStar


No matter how difficult life gets for Tommy, he’s always happy. He has nystagmus and another medical condition, but he never lets life get him down. To nominate your #NystagmusStar … Continue reading Tommy is a #NystagmusStar

Posted on December 18, 2019December 18, 2019Author Sue RickettsCategories Fundraising, Living with nystagmusTags #NystagmusStars, Christmas stars

Sarah is a #NystagmusStar


Sarah is an accomplished sports woman, mother and soon to be driver! She has never let nystagmus prevent her from trying anything she has wanted to do. Sarah is nominated … Continue reading Sarah is a #NystagmusStar

Posted on December 15, 2019December 15, 2019Author Sue RickettsCategories Fundraising, Living with nystagmusTags #NystagmusStars, Christmas stars

E-cards from the Nystagmus Network


Missed the Christmas post? No time to write your cards and run to the post box? No problem! Thanks to dontsendmeacard.com you can send a Nystagmus Network e-card today! Click … Continue reading E-cards from the Nystagmus Network

Posted on December 15, 2019December 10, 2019Author Sue RickettsCategories FundraisingTags Christmas cards

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