Sarah is an accomplished sports woman, mother and soon to be driver! She has never let nystagmus prevent her from trying anything she has wanted to do. Sarah is nominated by John who says: “She is my star.”
Thank you
E-cards from the Nystagmus Network
Missed the Christmas post? No time to write your cards and run to the post box?
No problem!
Thanks to dontsendmeacard.com you can send a Nystagmus Network e-card today!
Click here to send your e-cards.
Oscar is a #NystagmusStar
Oscar sometimes finds it hard to understand why his nystagmus makes it so hard for him to do things, but he’s completely undaunted. He’s a keen fundraiser and always ready to help raise awareness, too. His Mum nominated him because she wants the world to know how amazing he is and, she says “for Oscar to know that he’s a superstar.”
Thank you
Lyla is a #NystagmusStar
Nystagmus hasn’t stopped Lyla doing anything! She has just learnt to walk and loves saying Hiya! Her Mum says: “She’s the most fearless child who never gives up and I know this will help her in the future!”
Thank you
Taylan is a #NystagmusStar
“Taylan is amazing”, says his Mum. “He struggles with his balance and sight but every day he tries his hardest at school and at home. He is kind and friendly and always smiling. He is perfect just the way he is and is our star today and every day.”
Thank you
Serena is a #NystagmusStar
Serena is a remarkable young person. She had a few medical problems early on in life and has very reduced vision, but her positive outlook means she gets on with life, surpassing even her parents’ aspirations and is always thinking of others. They say: “She brightens our day when things get too much. Just her smile makes you forget your worries. She’s here and she’s happy and she knows she’s loved.”
Thank you
Rory is a #NystagmusStar
Rory is nominated by his Mum. She says: “Rory’s nystagmus was diagnosed only 6 months ago, so we both still have a lot to learn! We may have further obstacles in the future, but he is not letting anything hold him back!”
Thank you
Our #NystagmusStars
This festive season the Nystagmus Network is celebrating the children and adults with nystagmus who fill the lives of their families and friends with twinkling light, love and laughter.
We’re asking you to tell us about your nystagmus stars – the adults and children who fill your life with light and make you proud of their achievements all year round.
To have your nystagmus star featured at the top of our Facebook page this December, please send us a photo, their first name and why you think they’re a nystagmus star.
To make a donation to our Christmas Stars appeal to help us support everyone with nystagmus to be a star, please CLICK HERE.
Thank you
Your last chance to order
Nystagmus Network Christmas cards will no longer be available to order at midnight on Friday night.
Don’t miss your chance to send these lovely festive cards and help raise awareness of nystagmus this Christmas.
Order your cards today!
Click here to order
Our #GivingTuesday Appeal
Nystagmus Network joins #GivingTuesday 2019, the global day of generosity on 3 December
Nystagmus Network is pleased to announce that we’re one of the thousands of organisations taking part in this year’s #GivingTuesday campaign on 3 December.
#GivingTuesday began in America in 2012, as a way to give back after all the consumerism of Black Friday and Cyber Monday.
It was brought to the UK in 2014 by the Charities Aid Foundation (CAF) with the key aim of encouraging people to think of others in the run up to Christmas.
There are numerous ways to get involved through donating to charity, volunteering or simply helping a friend, neighbour or family member.
Gráinne Mathews, Giving Tuesday UK Campaign Lead, says:
“Giving Tuesday is a chance for us all, no matter where we live or what we do, to help out a cause close to our hearts. This year we’re also encouraging everyone to make a #GivingTuesdayPledge and think of ways to have an impact year round, in addition to on the day itself.
That could mean giving a small monthly donation to a charity, or setting aside a couple of hours each month for volunteering. Together, all of these pledges will combine to make a world of difference to so many lives.”
The Nystagmus Network provides an education advocacy service for parents and carers of children and young people at nursery, school or college to ensure they have equal access to learning. We’d like to train another volunteer education advocate to help Frances and Claire with their enormous workload. Training costs £850. Please make a donation this #GivingTuesday to help us meet this need.
You can make your #GivingTuesday pledge by clicking here.
THANK YOU
To find out more about Giving Tuesday, and how you can get involved, visit: http://www.givingtuesday.org.uk/