Nystagmus Network woolly nystagmus mascots are now back in stock in our online shop.
Dressed in warm woolly hats and scarves, each mascot has its own individual skin and hair colour, nystagmus and a null point.
Thank you to our wonderful volunteer knitter, Lynda.
Or, if you prefer, you can order a nystagmus onesie mascot.
Thank you to everyone who has ordered a woolly nystagmus mascot this year. We are now officially sold out.
Together you have raised £360 and given new homes to 72 mascots.
THANK YOU!
Huge thanks, too, to our volunteers, Lynda and Sue, for all the knitting.
Thank you to everyone who sponsored Sue to knit 26 nystagmus mascots wearing running kit for her recent 2.6 challenge.
Thank you, too, to everyone who ordered a mascot.
All 26 mascots have now been sold, but Sue has promised to make some more as soon as she can.
Meanwhile, you can still order a regular nystagmus mascot, wearing a warm woolly hat and scarf, while stocks last.
Sue has finished her 2.6 challenge ahead of schedule. She has knitted 2.6 special edition Nystagmus Network mascots in less than 26 days!
Each mascot wears running kit to signify that the 2.6 challenge was intended to replace this year’s London Marathon, cancelled due to the pandemic.
So far, Sue has raised £315 in sponsorship for the Nystagmus Network. She hopes to raise even more funds for the charity as the mascots are now on sale in the charity’s online shop.
From now until 26 May, this is Sue’s daily schedule:
45 minutes yoga
8 hours working at the Nystagmus Network
1 hour walking her dogs
Then carry on with her Two Point Six Challenge for the Nystagmus Network: knitting 26 mascots by 26 May.
Sunday 26 April 2020 was to have been the date of the London Marathon with runners raising £millions for UK charities.
The Nystagmus Network’s runner, Adam, is still training to run in the postponed race in October.
Meanwhile, the organisers have launched The Two Point Six Challenge to help save the UK’s charities by giving us an opportunity to raise some funding to keep us going. It’s also completely safe and a bit of diversion during lockdown.
The Nystagmus Network’s Sue is amongst those taking up the challenge.
The idea is that you set yourself a target based around the numbers 2, 6, 2.6 or 26.
Sue says: “I can’t run a marathon, but I can knit!
Nystagmus Network mascots usually wear woolly hats and scarves, but for my 2.6 challenge I’m going to knit 26 mascots wearing running kit by 26 May. Please sponsor me if you can and wish me luck!”
A great way to make your time outdoors fun with the children is to go on a bear hunt.
Inspired by the lovely Michael Rosen’s fabulous book “We’re going on a bear hunt” people all over the world are placing teddy bears in their windows so that children can spot them when they’re out walking with their families.
Nystagmus Network’s Sue says: This was one of my children’s favourite books when they were little. We never tired of it. Even today I sometimes tell my dogs we’re going on a bear hunt, but they haven’t caught any yet!”
The Nystagmus Network mascot (pictured) caught a very big one (also pictured) when he went on his bear hunt earlier today.
Michael Rosen is currently unwell. We wish him a very speedy recovery.
Our lovely knitting volunteer, Lynda has just delivered a new supply of Nystagmus Network mascots for our online shop.
Each mascot represents a child who has nystagmus and wears a warm woolly hat and scarf against the stormy weather. Every mascot is individual, just like real children.
All profits from the sales of the mascots go directly to the Nystagmus Network and every mascot sold helps us raise awareness of the condition and gives a child (or an adult!) a woolly friend just like them.
You can order your mascot from our online shop, here.
Thank you, Lynda!
