Nystagmus is … a guide for adults

A fabulous new publication, Nystagmus is … a guide for adults, is now available FREE from our online shop. The booklet is inspired by the wonderful Roger (pictured), who first contacted us with the idea last Nystagmus Awareness Day. He began with the words: “I have enjoyed nystagmus for nearly 80 years” and went on to outline … Continue reading Nystagmus is … a guide for adults

A YouGov nystagmus awareness survey

The Nystagmus Network commissioned a YouGov survey in May 2020, ahead of Nystagmus Awareness Day on 20 June, to see how aware the UK population is of nystagmus. The survey was free of charge, thanks to a competition, run by the Small Charities Coalition of which we are a member. The headline results 82% of … Continue reading A YouGov nystagmus awareness survey

Thank you, Lynda

Our lovely knitting volunteer, Lynda has just delivered a new supply of Nystagmus Network mascots for our online shop. Each mascot represents a child who has nystagmus and wears a warm woolly hat and scarf against the stormy weather. Every mascot is individual, just like real children. All profits from the sales of the mascots … Continue reading Thank you, Lynda