Night in with the Nystagmus Network


Virtual Open Day 2020, on Saturday 3 October, will close with A Night in with the Nystagmus Network, a virtual supper party for members and invited VIP guests.  This is a fabulous opportunity to meet, chat and network with nystagmus experts, guest speakers and presenters, supporters and members of the Nystagmus Network whilst enjoying a relaxed … Continue reading Night in with the Nystagmus Network

Night in with the Nystagmus Network


The Nystagmus Network virtual Open Day takes place on 3 October, with presentations, workshops, forums and fun for everyone. The day, full of support and information and everything nystagmus, draws to a close in the evening with the spectacular Night in with the Nystagmus Network, a virtual supper party with an amazing guest speaker. Night … Continue reading Night in with the Nystagmus Network

Mike’s a Nystagmus Super Hero


In case you haven’t heard yet, Southampton born, Mike Larcombe, who has CN, set off on his Walk for Wiggly Eyes on 16 December. Mike is walking the entire length of both islands of New Zealand to raise awareness of nystagmus and funding for nystagmus research. The Nystagmus Network is one of Mike’s 3 chosen beneficiary charities. The others … Continue reading Mike’s a Nystagmus Super Hero

Trekking through Middle Earth for nystagmus research


Follow Mike’s wiggly progress on his Facebook page, here and donate to his Nystagmus Network fundraising page, here. A sight-impaired young Englishman, Mike Larcombe, is preparing to trek across New Zealand to raise money for a complex eye condition that blurs his vision. Mike has nystagmus, which he refers to as “wiggly eyes” and so … Continue reading Trekking through Middle Earth for nystagmus research

Mike’s wiggly walk – video update


Mike has nystagmus and so does his young nephew, Archie. Later this year and well into 2020, Mike will be walking the length of New Zealand to help find a cure for nystagmus. The route he’s following is the Te Araroa pathway, taking in both the north and south islands, on foot and sometimes in … Continue reading Mike’s wiggly walk – video update