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Supporting people living with nystagmus

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Category: Fundraising

Oscar is a #NystagmusStar


Oscar sometimes finds it hard to understand why his nystagmus makes it so hard for him to do things, but he’s completely undaunted. He’s a keen fundraiser and always ready … Continue reading Oscar is a #NystagmusStar

Posted on December 14, 2019December 14, 2019Author Sue RickettsCategories Fundraising, Living with nystagmusTags #NystagmusStars, Christmas stars

Lyla is a #NystagmusStar


Nystagmus hasn’t stopped Lyla doing anything! She has just learnt to walk and loves saying Hiya! Her Mum says: “She’s the most fearless child who never gives up and I … Continue reading Lyla is a #NystagmusStar

Posted on December 14, 2019December 14, 2019Author Sue RickettsCategories Fundraising, Living with nystagmusTags #NystagmusStars, Christmas stars

Taylan is a #NystagmusStar


“Taylan is amazing”, says his Mum. “He struggles with his balance and sight but every day he tries his hardest at school and at home. He is kind and friendly … Continue reading Taylan is a #NystagmusStar

Posted on December 12, 2019December 12, 2019Author Sue RickettsCategories Fundraising, Living with nystagmusTags #NystagmusStars, Christmas stars

Serena is a #NystagmusStar


Serena is a remarkable young person. She had a few medical problems early on in life and has very reduced vision, but her positive outlook means she gets on with … Continue reading Serena is a #NystagmusStar

Posted on December 11, 2019December 11, 2019Author Sue RickettsCategories Fundraising, Living with nystagmusTags #NystagmusStars, Christmas stars

Rory is a #NystagmusStar


Rory is nominated by his Mum. She says: “Rory’s nystagmus was diagnosed only 6 months ago, so we both still have a lot to learn! We may have further obstacles … Continue reading Rory is a #NystagmusStar

Posted on December 11, 2019December 11, 2019Author Sue RickettsCategories Fundraising, Living with nystagmusTags #NystagmusStars, Christmas stars

Our #NystagmusStars


This festive season the Nystagmus Network is celebrating the children and adults with nystagmus who fill the lives of their families and friends with twinkling light, love and laughter. We’re … Continue reading Our #NystagmusStars

Posted on December 11, 2019December 11, 2019Author Sue RickettsCategories Charity highlights, FundraisingTags Christmas stars

Your last chance to order


Nystagmus Network Christmas cards will no longer be available to order at midnight on Friday night. Don’t miss your chance to send these lovely festive cards and help raise awareness … Continue reading Your last chance to order

Posted on December 10, 2019December 10, 2019Author Sue RickettsCategories FundraisingTags Christmas cards

Our #GivingTuesday Appeal


Nystagmus Network joins #GivingTuesday 2019, the global day of generosity on 3 December Nystagmus Network is pleased to announce that we’re one of the thousands of organisations taking part in … Continue reading Our #GivingTuesday Appeal

Posted on December 2, 2019December 2, 2019Author Sue RickettsCategories FundraisingTags #GivingTuesday, Education Advocacy

Our Christmas stars


This festive season the Nystagmus Network is celebrating the children and adults with nystagmus who fill the lives of their families and friends with twinkling light, love and laughter. We’re … Continue reading Our Christmas stars

Posted on November 30, 2019November 30, 2019Author Sue RickettsCategories FundraisingTags Christmas stars
Mike wears his Nystagmus Network T short and smiles for the camera

Trekking through Middle Earth for nystagmus research


Follow Mike’s wiggly progress on his Facebook page, here and donate to his Nystagmus Network fundraising page, here. A sight-impaired young Englishman, Mike Larcombe, is preparing to trek across New … Continue reading Trekking through Middle Earth for nystagmus research

Posted on November 27, 2019November 27, 2019Author Sue RickettsCategories Events, Fundraising, Posts, researchTags Mike Larcombe, New Zealand, Walk for Wiggly Eyes

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