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Supporting people living with nystagmus

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Category: Information and Support

A guide to a baby’s eyes


Often it’s a parent, close friend or family member who first discovers that there’s something different about a baby’s eyes. It could be nystagmus. Do you know the milestones in … Continue reading A guide to a baby’s eyes

Posted on June 5, 2019June 5, 2019Author Sue RickettsCategories Information and SupportTags baby, Look After Your Eyes
Acquired Nystagmus Group logo.

Our new support group for Acquired Nystagmus


The Nystagmus Network is contacted more and more often by people living with Acquired Nystagmus. Experience of this condition is very different from Congenital Nystagmus in a number of ways. … Continue reading Our new support group for Acquired Nystagmus

Posted on May 31, 2019June 3, 2019Author Sue RickettsCategories Information and Support, Living with nystagmus
Dan Williams crouches beside his guide dog, Zodiac.

“I’m struggling to see at work”


A guest post from our Open Day 2019 keynote speaker, Daniel Williams, founder of Visualise Training and Consultancy: Losing eyesight is both challenging and difficult, scary and disconcerting. Having to … Continue reading “I’m struggling to see at work”

Posted on May 29, 2019May 29, 2019Author Sue RickettsCategories Guest posts, Information and Support, Living with nystagmusTags Daniel Williams, employment, Visualise Training and Consultancy
Dan Williams crouches beside his guide dog, Zodiac.

Referrals change lives


In a recent article published by Vision UK, Founder of Visualise Training and Consultancy, Daniel Williams, discusses the importance of referring patients from the hospital eye clinic or High Street … Continue reading Referrals change lives

Posted on May 28, 2019May 28, 2019Author Sue RickettsCategories Information and Support, Living with nystagmus, Open Day 2019Tags Daniel Williams, Visualise Training and Consultancy

A nystagmus care pathway


The notes below are taken from an article recently published in the British and Irish Othoptic Journal, BIOJ. Arguments for the Adoption of a Nystagmus Care Pathway Authors: Christopher M … Continue reading A nystagmus care pathway

Posted on May 20, 2019May 20, 2019Author Sue RickettsCategories Information and SupportTags BIOJ, Chris Harris, Nystagmus Care Pathway

Daniel’s a man on a mission


Man on a Mission with Low Vision, visually impaired entrepreneur Daniel Williams is working to raise awareness of the value to business of meeting the needs of visually impaired customers … Continue reading Daniel’s a man on a mission

Posted on April 30, 2019April 30, 2019Author Sue RickettsCategories Information and Support, Open Day 2019, PostsTags Daniel Williams, Visualise Training and Consultancy

A new RNIB guide to outdoor play


The Royal National Institute for the Blind (RNIB) has recently released a new guide, Messy and Muddy, which explores outdoor play for children living with sight loss. The new guide … Continue reading A new RNIB guide to outdoor play

Posted on April 17, 2019April 17, 2019Author Sue RickettsCategories Information and Support, Living with nystagmusTags children, outdoor play, RNIB

Benefits rates updates


We are grateful to Neil at Social Welfare Training Ltd for keeping us updated with UK benefits rates. For people living with nystagmus or supporting a child or young person … Continue reading Benefits rates updates

Posted on April 8, 2019April 8, 2019Author Sue RickettsCategories Information and Support, Living with nystagmusTags DLA, nystagmus and benefits, PIP

Sue attends VIEW 2019


Sue represented the charity once again this year at the annual VIEW conference in Birmingham on 14 and 15 March. VIEW represents qualified teachers supporting visually children and young people … Continue reading Sue attends VIEW 2019

Posted on March 18, 2019March 18, 2019Author Sue RickettsCategories Events, Information and Support

Enjoy a cuppa with Sue


The Nystagmus Network’s Sue will be hosting an informal meet up for everyone affected by nystagmus on Wednesday 20 March at The Partially Sighted Society, Doncaster. Everyone welcome.

Posted on March 18, 2019March 18, 2019Author Sue RickettsCategories Events, Information and SupportTags Doncaster, Partially Sighted Society

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