The Nystagmus Network is contacted more and more often by people living with Acquired Nystagmus. Experience of this condition is very different from Congenital Nystagmus in a number of ways.
Often people have had no previous sight problems at all when the nystagmus develops and the changes in their quality of life can be quite devastating.
The Nystagmus Network is setting up a new peer to peer support group for people with AN. It doesn’t matter whether you’re newly diagnosed or have been living with the condition for years. You’re welcome to join us to share your concerns, your highs and lows and maybe work together to find some solutions.
The group is lead by Nystagmus Network’s Sue and our fabulous new volunteer, Patricia. We will meet virtually, initially, through email or Whatsapp and we hope to set up meetings in the future.
If you or someone you know could benefit from chatting with others living with Acquired Nystagmus and would like to join our group, please contact us today. There is no charge and everyone is welcome.