Over 200 people gathered together on Saturday 28 September at the spectacular Principality Stadium, Cardiff for the Nystagmus Network Open Day 2019. To the strains of Sospan Fach, by Cerys … Continue reading Open Day 2019 – the highlights
Category: Living with nystagmus
Jeans for Nystagmus Genes: Delilah’s story
Delilah’s story: Delilah is helping to raise awareness of children’s genetic disorders with the UK children’s charity Genetic Disorders UK and their annual fundraising day, Jeans for Genes Day. This … Continue reading Jeans for Nystagmus Genes: Delilah’s story
A survey on glaucoma and nystagmus
You can support the University of Cardiff team to develop new diagnostic testing for people with nystagmus by taking their survey today. “The Research Unit for Nystagmus at Cardiff University … Continue reading A survey on glaucoma and nystagmus
Going to uni with nystagmus
Today’s guest post comes from Ella, author of the blog, Life of Ella. Ella is a First Class Honours graduate and a civil servant. She also happens to have nystagmus. … Continue reading Going to uni with nystagmus
Manchester meet up
The next meeting of our new North West nystagmus network will take place on Saturday 7 September in central Manchester, 10am to 12 noon. Nystagmus Network trustee, Marie Turnbull will … Continue reading Manchester meet up
Nystagmus and driving by Sophie
Please download our guide to Nystagmus and Driving here This guest post is from blogger, Sophie who shares her experience of living, laughing and loving with nystagmus in her blog … Continue reading Nystagmus and driving by Sophie
Nystagmus is …
In the run up to Nystagmus Awareness Day on 20 June, we published lots of your nystagmus success stories in our campaign “How amazing are you?” One of the most popular stories … Continue reading Nystagmus is …
Congenital nystagmus and reading
At the recent celebration for Professor Irene Gottlob at the University of Leicester, Dr Frank Proudlock spoke about nystagmus and reading. Frank commented that people with congenital nystagmus can read … Continue reading Congenital nystagmus and reading
How amazing is Aneeba?
Thank you for sending us all your nystagmus success stories. We just love to read them and we know they bring hope and inspiration to so many people. Today we … Continue reading How amazing is Aneeba?
How amazing is Ellen?
Throughout June we’ve been celebrating your nystagmus success stories in our campaign ‘How amazing are you?’ Today, Ellen shares her story: “My name is Ellen and I’m 32 years old. I’m … Continue reading How amazing is Ellen?