The Nystagmus Network provides much needed information for parents of newly diagnosed children and babies . We understand that this is a very difficult time and that there is sometimes not very much information available.
Our free to download Parents Booklet provides a clear introduction to the condition and gives parents an idea of what to expect and how to support their child.
Following the success of the Nystagmus Network photography competition in 2017 in honour of our former trustee, the late Steve McKay, we’ve decided to launch a Christmas 2018 photo competition.
The winning photograph will feature on our 2019 Christmas cards.
Entrants can be any age. They must have nystagmus themselves or be the close relative of someone who does.
To enter the competition please submit 1 high resolution image only, which must be your own work. The subject matter is simply Christmas.
Please email your photograph, by no later than Thursday 31 January to [email protected].
To give you an idea of the standard of photography, you can review our previous finalists’ pictures here …
| Photography competition 2017 entries |
| Go to this Sway |
The picture above is the 2017 winning photograph by Hanna. The subject last time was not Christmas, but the ‘built environment’.
Whether you’ve had nystagmus all your life or have acquired it more recently, the Nystagmus Network is here to support adults with the condition, with information, research updates, news, meetings, membership and more.
Or why not get involved with one of our fundraising activities?
The Nystagmus Network is pleased to be able to bring you so many real life nystagmus stories, thanks to the thoughtfulness and generosity of members of the nystagmus community.
Today we bring you Mélissa’s story.
Great for inclusion and awareness raising, the Nystagmus Network has free to download materials for schools. Don’t see what you need – please ask us.
Our very first regional nystagmus network is already up and running in Manchester, hosted by our trustee, Marie. There are lots more local groups to come in 2019, giving more and more people the opportunity to meet up and share information and experiences. If you would like to join one of our new groups, or would like to volunteer to host, please contact us today.
Thank you.
Nystagmus Network Christmas cards will no longer be available after today, so please place your order NOW!
97% of charities in the UK are small. The Nystagmus Network is so proud to be a small charity and part of The Small Charities Coalition. We all got together to make a Christmas advert. Together we wanted to show you how small charities keep communities going. So this Christmas, please enjoy our advert and support a #SmallButVital charity! Thank you!
The Nystagmus Network celebrates national and international Nystagmus Awareness Day each year on 20 June to spread the word about nystagmus.
Today only you can order 5 FREE Nystagmus Network Christmas cards from our online shop.
The cards were designed for us by Ben and Charlotte, Jack and Lilly.
Please order yours today to help us let everyone know about nystagmus this Christmas.
