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I am in my 50s and in my generation, there was little awareness or support for people with nystagmus or their parents. Growing up, I was always a clumsy child … Continue reading Angela’s Story
Make sure you’re ready to take part in Nystagmus Awareness Day 2024 on 20 June. Your FREE digital programme has all the information and links you need. There’s the great … Continue reading It’s nearly Nystagmus Awareness Day 2024
Are you an older adult living with visual impairment? We are a team of researchers at the University of Strathclyde who want to explore your experiences of travelling from home … Continue reading Calling people living with nystagmus in Scotland who are over 65
Sarah Hösli, Honorary Senior Research Fellow with the Brain and Vestibular Group at Imperial College London, part of Dr Barry Seemungal’s team, invites study participants. She writes: “We are currently … Continue reading Take part in research at Charing Cross Hospital, London
Through 2023 the charity has gone from strength to strength in delivering support, funding research, and raising awareness. As we enter our Ruby anniversary year trustees would like to thank again … Continue reading Nystagmus Network trustees publish their annual report for 2023
Notice is hereby given that the Annual General Meeting 2023 (the “Meeting”) of THE NYSTAGMUS NETWORK (the “Charitable Incorporated Organisation or CIO”) will be held online on Thursday 27 June … Continue reading Notice of the Nystagmus Network AGM 2023
My favourite subjects at secondary school in 1984 were hockey, music and maths. Fast forward 40 years and those subjects still dominate my life. Professionally I’m Finance Director for an … Continue reading Vicky’s 1984 Story
The year was 1984 and in a little corner of Middlesex, a baby boy was just starting to explore the world, especially a local park that our family home shared … Continue reading Harshal’s 1984 story
We belong to many tribes, often overlapping, during our lives. The story of my nystagmus tribe starts in 1984. In particular, the day I first met others with nystagmus and … Continue reading John’s 1984 Story – The world is my chauffeur
As Mike takes on his latest Walk for Wiggly Eyes 4 challenge in Croatia, his Mum, Karen, tells us about an amazing party she hosted for Mike, his family and … Continue reading Mike’s Southampton family send off
