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News


Stay up to date with all our latest stories and features in one place.

Read our news here

 

A very wobbly unicycle ride


On Saturday 29 October young Research Orthoptist, Daniel Osborne, kicked off a whole raft of Wobbly Wednesday activities at the Southampton Eye Unit in real style by riding a 12 … Continue reading A very wobbly unicycle ride

Posted on November 1, 2016November 2, 2016Author Daniel LewiCategories Fundraising, PostsTags fundraising, wobbly wednesday

Wobbly Wednesday – show your support!


Our video this week focuses on Wobbly Wednesday and why your support is so important! It helps us raise awareness of nystagmus and make it the topic of discussion for … Continue reading Wobbly Wednesday – show your support!

Posted on October 13, 2016November 2, 2016Author Daniel LewiCategories Charity highlights, Fundraising, Living with nystagmus, PostsTags nystagmus, wobbly wednesday

Do you want to ski like Josh?


Our son Joshua was born with oculo-cutaneous albinism in 2003. It was a surprise to both our families as no one on either side had any recollection of anyone in … Continue reading Do you want to ski like Josh?

Posted on October 6, 2016October 7, 2016Author Daniel LewiCategories Living with nystagmus, Parent stories, PostsTags skiing

Skiing with nystagmus


If you would like to take part in a skiing event please complete the form below.

Posted on October 3, 2016March 30, 2017Author Daniel LewiCategories Living with nystagmus, PostsTags skiing

No limits


This week the video blog at the Nystagmus Network features the amazing Josh!   Josh is a keen skier who loves to take part in ski competitions. However, he was … Continue reading No limits

Format VideoPosted on September 29, 2016October 4, 2016Author Daniel LewiCategories Living with nystagmus, PostsTags child, nystagmus, skiing, sport

A mum with nystagmus shares her story


I made my first contribution to the Nystagmus Network Focus newsletter after much parental cajoling and days, weeks, months, if not years, of adolescent procrastination, in the mid-1990s. To save … Continue reading A mum with nystagmus shares her story

Posted on September 28, 2016Author Daniel LewiCategories Living with nystagmus, Parent stories, PostsTags living with nystagmus, nystagmus, nystagmus network

Tom and his new class at school


Our latest video blog features an interview with one of our young members! In the video Tom talks about starting his new class at school and how he is a … Continue reading Tom and his new class at school

Format VideoPosted on September 15, 2016September 12, 2016Author Daniel LewiCategories Living with nystagmusTags child, nystagmus, story

Meet our new Nystagmus Network volunteers!


Today we are excited to officially announce our new volunteers at the Nystagmus Network! Earlier this year we started a recruitment drive to find people who were passionate and committed … Continue reading Meet our new Nystagmus Network volunteers!

Posted on September 8, 2016September 12, 2016Author Daniel LewiCategories Charity highlights, volunteerTags nystagmus, volunteer

Fundraising for the Nystagmus Network


Our latest video blog features an interview by our very own Sue with two of the charity’s fundraisers! Gavin and Paula Birch recently held a fun day and football match … Continue reading Fundraising for the Nystagmus Network

Format VideoPosted on September 1, 2016September 1, 2016Author Daniel LewiCategories Charity highlights, Fundraising, Living with nystagmus, PostsTags fundraising, nystagmus

Nystagmus and the new school term – by Elisheva Sokolic


When your child has nystagmus there might be slightly more to think about before you wave goodbye at the school gates than new shoes and homework diaries. Especially in the … Continue reading Nystagmus and the new school term – by Elisheva Sokolic

Posted on August 25, 2016August 25, 2016Author Guest AuthorCategories Living with nystagmus, Parent storiesTags blog, parent, school

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