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Author: Sue Ricketts

Nystagmus Network members hold up their voting cards.

Notice of the Nystagmus Network AGM 2023


Notice is hereby given that the Annual General Meeting 2023 (the “Meeting”) of THE NYSTAGMUS NETWORK (the “Charitable Incorporated Organisation or CIO”) will be held online on Thursday 27 June … Continue reading Notice of the Nystagmus Network AGM 2023

Posted on June 5, 2024Author Sue RickettsCategories Posts

Vicky’s 1984 Story


My favourite subjects at secondary school in 1984 were hockey, music and maths. Fast forward 40 years and those subjects still dominate my life. Professionally I’m Finance Director for an … Continue reading Vicky’s 1984 Story

Posted on June 3, 2024Author Sue RickettsCategories Nystagmus Awareness Day, Our Ruby Year, Ruby StoriesTags nystagmus, Our Ruby Year, Ruby Stories

Harshal’s 1984 story


The year was 1984 and in a little corner of Middlesex, a baby boy was just starting to explore the world, especially a local park that our family home shared … Continue reading Harshal’s 1984 story

Posted on May 23, 2024June 11, 2024Author Sue RickettsCategories Ruby StoriesTags nystagmus network, Our Ruby Year, Ruby Stories

John’s 1984 Story – The world is my chauffeur


We belong to many tribes, often overlapping, during our lives. The story of my nystagmus tribe starts in 1984. In particular, the day I first met others with nystagmus and … Continue reading John’s 1984 Story – The world is my chauffeur

Posted on May 20, 2024May 22, 2024Author Sue RickettsCategories Ruby StoriesTags nystagmus, nystagmus network, Our Ruby Year, Ruby Stories
Mike and his nephew, both wearing WWE T-shirts, fist bump for the camera.

Mike’s Southampton family send off


As Mike takes on his latest Walk for Wiggly Eyes 4 challenge in Croatia, his Mum, Karen, tells us about an amazing party she hosted for Mike, his family and … Continue reading Mike’s Southampton family send off

Posted on May 13, 2024Author Sue RickettsCategories Charity highlights, Fundraising, Guest posts, Nystagmus heroesTags Croatia, fundraising, Mike Larcombe, nystagmus, nystagmus heroes, nystagmus network, Walk for Wiggly Eyes
Photo: Kathryn Swanston as a student orthoptist in the Orthoptic Clinic at Moorfields Eye Hospital, High Holborn Branch c. 1984.

Kathryn’s 1984 story


In September 1984 I started my training as an orthoptist at Moorfields Eye Hospital School of Orthoptics.  Back then orthoptic training was a three-year diploma course for which students received … Continue reading Kathryn’s 1984 story

Posted on May 9, 2024Author Sue RickettsCategories Ruby StoriesTags #RubyPancake, nystagmus network, Ruby Stories
A postcard for the big nystagmus meet up in London on 13 July, featuring an image of Maria Theodorou, a clinician at Moorfields.

Booking is now open for our London event


Our next big nystagmus meet up takes place in London on Saturday 13 July, from 11am to 4pm. This is your chance to hear all the latest nystagmus news, learn … Continue reading Booking is now open for our London event

Posted on May 2, 2024Author Sue RickettsCategories Charity highlights, EventsTags London. big nystagmus meet up, nystagmus, nystagmus network
A group of adults and children walking together along a gravel path in a park with large trees.

Walk with us


On 18 and 19 May we’re encouraging all our followers and supporters to get out for a walk. The weekend falls during Mental Health Awareness Week. Spending time outside with … Continue reading Walk with us

Posted on April 30, 2024May 15, 2024Author Sue RickettsCategories Charity highlights, Living with nystagmus, nystagmus networksTags mental health, Mental Health Awareness Week, nystagmus, nystagmus network, nystagmus walk, time outside
Paul is proudly smiling for the camera wearing a smart burgundy coloured school uniform.

Paul’s 1984 Story


Sometimes I really don’t know where the time goes. Back in 1984, it was my first year at secondary school, and my parents were extremely proud of me for getting … Continue reading Paul’s 1984 Story

Posted on April 19, 2024June 19, 2024Author Sue RickettsCategories Ruby StoriesTags Our Ruby Year, Ruby Stories
A young woman with long, wavy 'red' hair smiles for the camera.

Marlow’s Story


I was born with nystagmus and multiple other eye conditions. I was put in gymnastics at an early age to help with coordination and balance. This led me into cheerleading … Continue reading Marlow’s Story

Posted on April 18, 2024May 8, 2024Author Sue RickettsCategories Ruby StoriesTags Our Ruby Year, Ruby Stories

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