Because there is such a close link between albinism and nystagmus, the Nystagmus Network works closely with Albinism Fellowship UK. Chair of AFUK, Roselle Potts, will be joining us this year at Open Day to speak with researchers, to find out more about our education advocacy service and chat with families affected by ocular or oculocutaneous albinism.
We’re delighted to confirm another opportunity to ski with the Nystagmus Network and the Outspan Rebels VI ski team.
On Sunday 26th August we will be running a two-hour ski lesson at £20 per person at Snozone, Milton Keynes.
From 2:30pm to 4:30pm we will have a beginners’ session on the starter slope and intermediates’ on the main slope.
Beginners – group lesson with Snozone qualified adaptive coaches
Intermediates – hints and tips at the top of the main slope with Ski Guide, Jamie Fuller and Alpine Race Coach, Glen Greener
Sorry, no sledging this time.
Visually impaired adults and children (over 4 years) with fully sighted friends/family members welcome.
If you’d like to come along please contact us today or email Jamie Fuller at [email protected]
It was a fantastic event. There were so many amazing people there to inspire adults and children to get out on the slopes and enjoy the snow. David Katz was there, sharing stories of his amazing photography career, despite having ocular albinism and nystagmus. The Outspan Rebels VI ski team were there, with their amazing Head Coach, Charlotte Evans MBE … and Menna and Jen were there, fresh from their medal success at the Winter Paralympics in PyeongChang.
It truly was a fabulous start to ‘Wobbly Week’ 2018. Huge thanks to Jamie Fuller for making it all happen – on Father’s Day!
We have another Snow Camp coming up on Sunday 15 July. Please contact us, using the form below, if you’d like to come along.
The first Nystagmus Network Snow Camp of 2018 takes place this Sunday, 17 June, at Snozone Milton Keynes. Lots of families have signed up to enjoy a day of sledging and skiing alongside the famous Outspan Rebels VI ski team. Their chief coach, Charlotte Evans MBE, will be on hand with training hints and tips and internationally acclaimed photographer, David Katz will also be there.
Not only that – but we’ve just heard that Paralympic ski super duo, Menna Fitzpatrick and Jennifer Kehoe will be there! Menna and Jen won one gold, two silver and a bronze medal in the Pyeongchang Paralympics earlier this year. What better inspiration for our nystagmus skiers?
Read more about Menna and Jen here.
Tickets to the biggest UK nystagmus event of the year will soon be available to book. Subscribed members of the charity will be able to book their priority free tickets to our annual Open Day from 12.00 midday on Thursday 26 June. Members will be notified with details of how to book their places by email or post.
Any remaining tickets will go on sale on a first come, first served basis to non-members from Thursday 26 July at £27 per adult, £10 per child.
This is a message from Marcus at Tate in which I tell you about our forthcoming Audio Description events at Tate Britain, this month and next.
Tate Britain, Monday 18th June 2018 at 10.30 am for refreshments and 11.00 am – 12.15 pm tour.
Aftermath: Art in the Wake of World War One
Join Marcus and Sara for a description and discussion of paintings from the new Tate Britain exhibition, Aftermath. We have chosen paintings that show the effects of warfare on young soldiers and how countries such as Germany and Britain tried to recover and re-present themselves in the 1920’s.
Free, no booking required. Please meet in the Manton Studio from 10.30 for refreshments.
Chairs and hearing support equipment will be provided.
Tate Britain, Monday 16th July 2018 at 10.30am for refreshments and 11.00am – 12.15pm tour.
Fire and Ice: comparing two masterpieces by Turner and Constable
Join Tate’s audio describers for a description of two great masterpieces of 1830: John Constable’s Salisbury Cathedral from the Meadows, and JMW Turner’s Caligula’s Palace. This is the first time that these two paintings have hung alongside each other since they were first ever displayed at the Royal Academy in 1830.
Tate’s Framing department has just reframed the Constable painting and they have given us a sample of the exact frame and materials they used. Marcus will facilitate handling of these objects in order to give an understanding of how Tate has authentically recreated a frame from the 1830’s, the exact date period of this painting.
Free, no booking required. Please meet in the Manton Studio from 10.30 for refreshments.
Chairs and hearing support equipment will be provided.
Have a great month and we hope to see you at one of our regular Audio Description events which always occur on the third Monday of each month at 11.00 am at Tate Britain.
We are delighted to be able to welcome Marsha De Cordova MP, Shadow Minister for Disabilities, as our keynote speaker at this year’s Open Day in September.
As a sneak preview, follow this link to hear Marsha talk about her nystagmus and how she must adapt her ministerial work to accommodate her visual impairment.
There are bound to be loads of bake sales for Nystagmus Awareness Day 2018 on 20 June, so we thought it would be a great idea to have some Nystagmus Network cake flags made, especially for you.
Order your free cake flags today. But hurry, they’re going like …
If you’ve signed up for the first Snow Camp of 2018, on 17 June, here’s a little taster of what to expect on the day. There’ll be skiing and sledging of course, but don’t forget to say hello to some very special visitors. They’ll all be there joining in the fun.
STOP PRESS – Menna and Jen are now coming, too! Woohoo!
The biggest nystagmus event of the year takes place on Saturday, 29 September in Birmingham. This is our annual Open Day, where 200 nystagmus families get together to talk about research, education, support, assistive technology, mobility, education and general day to day living with a visual impairment. The Nystagmus Network is seeking sponsorship from commercial organisations. If you’re interested and would like to find out more, please contact us today.
Priority booking for free tickets to charity members opens at 12:00 on Thursday, 28 June, with any remaining tickets going on general sale from 26 July.
