Moorfields Eye Hospital is holding an information day for adults with nystagmus since childhood. The day will allow you the opportunity to directly influence the patient pathway from diagnosis to treatment and the support services available.
There will be talks and lots of discussion about the way forward for nystagmus patient care and treatment.
The Nystagmus Network’s Sue will also be there.
Please click here for more details and to register for your FREE place.
We were so lucky to have the inspirational David Katz as our guest speaker at Open Day 2018. Not only did he deliver an amazing presentation, but he was around all day chatting with delegates and supporting Maayan with her Movement and Spirit workshop for the children.
If you weren’t able to come to Open Day this year, David’s short film will give you a flavour of what you missed. Enjoy!
We’re about to launch our very first local nystagmus network in Manchester. Your host, Nystagmus Network trustee, Marie Turnbull, is arranging a date, time and venue for your first get together. We’d like as many people as possible to be involved.
If you’d like to come along, please contact us by email and we’ll send you all the details.
Thank you!
At 11am on Sunday 10 March 2019 we’re planning the biggest nystagmus community get together of the year. Team Nystagmus Network will be taking part in the Eye to Eye Walk between the iconic London Eye on London’s South Bank to the equally famous and symbolic eye sign outside Moorfields Eye Hospital.
We’re doing this to raise much needed funding for ground breaking research into nystagmus at Moorfields and University College, London.
You can choose to take the 4 mile or the 14 mile walk. It’s up to you.
Bring the family, bring the dog and help the nystagmus cause by raising lots of lovely sponsorship.
Registration is now open. It’s free for accompanied children under 16 and is just £20 for the 14 mile route and £15 for the four mile route. We suggest a minimum sponsorship of £100 for every participating adult.
Moorfields will supply:
The Nystagmus Network is delighted to be supporting a Nystagmus Patient Information Day, running at Moorfields, London on Saturday 24 November.
Moorfields Eye Hospital is holding an information day for adults with nystagmus since childhood. The day will allow you the opportunity to directly influence the patient pathway from diagnosis to treatment and the support services available.
The structure of the day will involve:
Sue, from the Nystagmus Network, will be at the event.
Lunch and coffee will be provided, and places (free of charge) will be allocated on a first come, first served basis.
Tickets close: midnight Friday 9 November
For enquires please contact Maria Theodorou at: [email protected].
This day is funded by Friends of Moorfields with support from Nystagmus Network.
We will not be discussing children services at this meeting. Some of the content and discussions had may not be suitable for children. We are unable to offer childcare facilities on the day.
To book your place, please click here.
The event is hosted by NIHR Biomedical Research Centre at Moorfields Eye Hospital NHS Foundation Trust and UCL Institute of Ophthalmology.
In partnership with Moorfields Eye Charity, the Nystagmus Network is recruiting a team to take part in the Eye2Eye walk from the London Eye to the iconic eye on the front of the Moorfields Eye Hospital building. The walk takes place on Sunday 10 March 2019 and you can choose to walk 4 or 14 miles. Bring the children, bring the dog! Have a great day out and help us raise lots of money for nystagmus research at Moorfields and University College, London. To apply, please email us at [email protected] or call 01427 718093.
Researchers and clinicians from Cardiff, London, Plymouth, Sheffield and Southampton are meeting today to plan the way ahead for nystagmus research. Our medical experts are joined by charity trustees and our funding partners, Fight for Sight.
The half day conference, hosted by the Nystagmus Network, takes place in Birmingham today ahead of the charity’s Open Day 2018 on Saturday.
With thanks to Mike Hughes, our volunteer benefits adviser, who has today supplied a newly updated edition of his booklet on nystagmus and benefits.
The new version, taking into account all the latest changes in legislation, is now available free of charge. Download your copy here.
Mike will, of course, be at Open Day to answer all your benefits queries in person.
Thanks to Paul Bowry and his family, the Nystagmus Network will be enjoying our first ever fundraising Car Boot Sale on Tuesday 18 September.
Paul has been running boot fairs at the site in Essex for some time. Following his grandson’s nystagmus diagnosis, Paul decided to negotiate a charity collection with the organisers at one of their events.
This proved so successful that Paul decided to take the next step and seek permission to hold a dedicated charity event, with all proceeds going to the Nystagmus Network and a local group setting up a sensory room for children with multiple disabilities.
If you’re in the Essex area, please go along to support Paul. Anyone with nystagmus is guaranteed free entry and a very warm welcome from Paul!
