VI skiing this Bank Holiday weekend!

We’re delighted to confirm another opportunity to ski with the Nystagmus Network and the Outspan Rebels VI ski team.

On Sunday 26th August we will be running a two-hour ski lesson at £20 per person at Snozone, Milton Keynes.

From 2:30pm to 4:30pm we will have a beginners’ session on the starter slope and intermediates’ on the main slope.

Beginners – group lesson with Snozone qualified adaptive coaches

Intermediates – hints and tips at the top of the main slope with Ski Guide, Jamie Fuller and Alpine Race Coach, Glen Greener

Sorry, no sledging this time.

Visually impaired adults and children (over 4 years) with fully sighted friends/family members welcome.

If you’d like to come along please contact us today or email Jamie Fuller at [email protected]


Did you come to Snow Camp?

It was a fantastic event. There were so many amazing people there to inspire adults and children to get out on the slopes and enjoy the snow. David Katz was there, sharing stories of his amazing photography career, despite having ocular albinism and nystagmus. The Outspan Rebels VI ski team were there, with their amazing Head Coach, Charlotte Evans MBE … and Menna and Jen were there, fresh from their medal success at the Winter Paralympics in PyeongChang.

It truly was a fabulous start to ‘Wobbly Week’ 2018. Huge thanks to Jamie Fuller for making it all happen – on Father’s Day!

We have another Snow Camp coming up on Sunday 15 July. Please contact us, using the form below, if you’d like to come along.



Menna and Jen are coming to Snow Camp!

The first Nystagmus Network Snow Camp of 2018 takes place this Sunday, 17 June, at Snozone Milton Keynes. Lots of families have signed up to enjoy a day of sledging and skiing alongside the famous Outspan Rebels VI ski team. Their chief coach, Charlotte Evans MBE, will be on hand with training hints and tips and internationally acclaimed photographer, David Katz will also be there.

Not only that – but we’ve just heard that Paralympic ski super duo, Menna Fitzpatrick and Jennifer Kehoe will be there! Menna and Jen won one gold, two silver and a bronze medal in the Pyeongchang Paralympics earlier this year. What better inspiration for our nystagmus skiers?

Read more about Menna and Jen here.

Nystagmus Awareness Day – for snow men!

Whilst we are all looking forward to the very first Nystagmus Awareness Day in the summer – on Wednesday 20 June – for those of you who miss the old days, when Nystagmus Awareness Day was celebrated in November, you can get this year’s ‘Wobbly Week’ off to a great start by coming sledging or skiing with us at the Snow Dome, Milton Keynes.

Jamie Fuller, from the Outspan Rebels VI ski team, is organising the first of two amazing Nystagmus Network Snow Camps. It takes place on Sunday 17 June.

There will be skiing and sledging for adults and children with nystagmus, their fully sighted parents, siblings and friends. Everyone is welcome to come along. Each session costs just £10 per person.

Charlotte Evans MBE will be there on the day along with Jamie and the Outspan Rebels, themselves. There might even be a few very special visitors!

It is sure to be a great day. So please join us if you can. To register your interest, please contact us.

To make a donation for Nystagmus Awareness Day, please visit our Justgiving page. Thank you.

The Outspan Rebels VI ski team

Jamie and Josh Fuller are well known in the nystagmus community as the father and son team who delivered an inspirational presentation at Open Day last September. Jamie organised the Nystagmus Network’s first ever ski experience last year and this year they have promised us not one but two ski camps.

The Outspan Rebels VI ski team have enjoyed a very busy few months, kicking off with their Snow Camp in Hinterlux in October. This involved race training and technical skills with their head coach, Charlotte Evans MBE. Team founder, Jamie, said: “It was brilliant to get out to the mountains with a couple of days of challenging weather. High winds and white out conditions made guiding interesting, to say the least. It tested all our skills, especially those new to glacier conditions. On the upside, the bad weather brought fresh snow and some fantastic skiing.”

Then it was back home to the Milton Keynes snow dome for the mixed ability and disability races. The VI skiers performed well in the competition, with Josh, coming up against some very tough competition in his age group. His hard work paid off. He is currently in gold medal position!

Other young visually impaired skiers making huge progress this season are Darcy, new to racing and working with her new guide, Katherine; guide Jim and 10 year old Hester, now skiing under the fantastic team name of ‘Jester’; shy and retiring Charlie, also known as ‘The Monster from Manchester’ once out on the piste; and 11 year old Sam who has been working out in Italy with his guide.

During the Winter Paralympics in Pyeongchang the Channel 4 presenting team, including Outspan Rebels’ head coach and Sochi gold medal winner, Charlotte Evans MBE, were all based at the Snow Dome which meant that the rebels themselves had several opportunities for a brush with fame.

Later this month the Outspan Rebels will be off to Tignes in France to compete in the British Alpine Championships. There they will be rubbing shoulders with more stars: Dave Ryding, Alex Tilley and Millie Knight, along with gold medallists Kelley Gallagher and Menna Fitzpatrick and they will be racing on world cup courses!