Notice is hereby given that the Annual General Meeting 2020 of the Nystagmus Network will take place virtually, online on Saturday 25 September 2021. Members of the Nystagmus Network have already been notified and will receive the agenda and minutes from the AGM 2019 no less than 14 days in advance.
Nystagmus Network Chairman, Tim Cuddeford has sent a Christmas message to members of the Nystagmus Network. Tim spoke of the challenges that 2020 has brought for everyone, not least the nystagmus community, but also highlighted the successes the charity has been able to achieve, thanks to the support of our intrepid fundraisers and donors and … Continue reading A Christmas message from Tim
All members of the Nystagmus Network have been notified that the (virtual) Annual General Meeting of the Nystagmus Network takes place at 5pm on Saturday 3 October. Members will join the meeting via Zoom to: receive the statement of accounts approve the annual report exercise their right to vote If you would like to enjoy … Continue reading Annual General Meeting
Virtual Open Day 2020, on Saturday 3 October, will close with A Night in with the Nystagmus Network, a virtual supper party for members and invited VIP guests. This is a fabulous opportunity to meet, chat and network with nystagmus experts, guest speakers and presenters, supporters and members of the Nystagmus Network whilst enjoying a relaxed … Continue reading Night in with the Nystagmus Network
The Nystagmus Network virtual Open Day takes place on 3 October, with presentations, workshops, forums and fun for everyone. The day, full of support and information and everything nystagmus, draws to a close in the evening with the spectacular Night in with the Nystagmus Network, a virtual supper party with an amazing guest speaker. Night … Continue reading Night in with the Nystagmus Network
Together with Sight and Sound Technology, the Nystagmus Network is offering 2 free webinars on low vision technology for adults and children with nystagmus. Thursday 23 April, 6-7pm: Low vision technology for adults with acquired or congenital nystagmus Thursday 7 May, 6-7pm: Low vision technology for children with nystagmus, with particular focus on access to … Continue reading Free webinars on low vision technology
Notice of Annual General Meeting Notice is hereby given that the Annual General Meeting (the “Meeting”) of THE NYSTAGMUS NETWORK (the “Charitable Incorporated Organisation or CIO”) will be held at The Millennium Lounge, The Principality Stadium, Westgate St, Cardiff CF10 1NS on Saturday 28 September 2019 at 15.20. AGENDA The Treasurer will take any questions … Continue reading Notice of the AGM
Members of the Nystagmus Network will by now have received their special link to our online booking platform and will be able to book their free adult and child places for Open Day 2019 from midday today, Monday 3 June. Any remaining tickets will go on sale to non-members from Monday 1 July at midday. … Continue reading Open Day booking for Members is OPEN!
Daniel Williams is our keynote speaker at Open Day 2019. Daniel is the founder of Visualise Training and Consultancy, a company which delivers sight loss awareness to employers. Daniel, who is gradually losing his own sight due to Retinitis Pigmentosa, says: “I am passionate about disability rights and making mainstream services accessible to all, enabling … Continue reading Introducing Daniel
Author of the 2019 book ‘Can I tell you about Nystagmus?’ will be at the Nystagmus Network Open Day on Saturday 28 September. Amber, the leading character in Nadine’s book, was inspired by her daughter, who has nystagmus. At Open Day Nadine will be happy to chat with parents and share experiences of parenting a … Continue reading Meet Nadine at Open Day