Notice of Annual General Meeting Notice is hereby given that the Annual General Meeting (the “Meeting”) of THE NYSTAGMUS NETWORK (the “Charitable Incorporated Organisation or CIO”) will be held at The Millennium Lounge, The Principality Stadium, Westgate St, Cardiff CF10 1NS on Saturday 28 September 2019 at 15.20. AGENDA The Treasurer will take any questions … Continue reading Notice of the AGM
Members of the Nystagmus Network will by now have received their special link to our online booking platform and will be able to book their free adult and child places for Open Day 2019 from midday today, Monday 3 June. Any remaining tickets will go on sale to non-members from Monday 1 July at midday. … Continue reading Open Day booking for Members is OPEN!
Daniel Williams is our keynote speaker at Open Day 2019. Daniel is the founder of Visualise Training and Consultancy, a company which delivers sight loss awareness to employers. Daniel, who is gradually losing his own sight due to Retinitis Pigmentosa, says: “I am passionate about disability rights and making mainstream services accessible to all, enabling … Continue reading Introducing Daniel
Author of the 2019 book ‘Can I tell you about Nystagmus?’ will be at the Nystagmus Network Open Day on Saturday 28 September. Amber, the leading character in Nadine’s book, was inspired by her daughter, who has nystagmus. At Open Day Nadine will be happy to chat with parents and share experiences of parenting a … Continue reading Meet Nadine at Open Day
No one here at the Nystagmus Network can actually remember the last time there was an increase in our annual membership subscriptions. That means it must have been at least a decade ago. But with the charity’s work and reach expanding all the time as we seek to meet the needs of an ever growing … Continue reading Membership subscriptions increase from 1 April
The Nystagmus Network is delighted to share news of the launch today of a brand new book about nystagmus. Written by Nadine Neckles, the book looks at nystagmus from a child’s point of view and provides insights for parents and professionals alike. Nadine is a friend of the Nystagmus Network and previously contributed an article … Continue reading Can I tell you about nystagmus?
There’s nothing quite like the feeling of belonging, to know that you’re part of a community and among friends, all working for the same goals as you. That’s why the Nystagmus Network is a membership organisation. The more people we represent who are affected by nystagmus, or have an interest in the condition, the better … Continue reading Are you a member?
On Giving Tuesday, to say thank you and as a mark of our appreciation of their support, we’ve invited our top 20 fundraisers of 2018, who were not already members, to join the Nystagmus Network as members in 2019. Are you one of the chosen ones? We are delighted that they have agreed to accept. … Continue reading Welcome to our honorary members
Members of the Nystagmus Network have just 24 hours left to book their free priority places for the 2018 Open Day in September. If you haven’t already done so, please use your link to book your place NOW! Remaining tickets will go on general sale tomorrow. Watch this space for details!