Category: Fundraising

The Eye2Eye walk for nystagmus research

In partnership with Moorfields Eye Charity, the Nystagmus Network is recruiting a team to take part in the Eye2Eye walk from the London Eye to the iconic eye on the front of the Moorfields Eye Hospital building. The walk takes place on Sunday 10 March 2019 and you can choose to walk 4 or 14 miles. Bring the children, bring the dog! Have a great day out and help us raise lots of money for nystagmus research at Moorfields and University College, London. To apply, please email us at [email protected] or call 01427 718093.

Vanessa and Richard complete their abseil

Vanessa and Richard were away on holiday when they heard that the Nystagmus Network were looking for people to abseil down the UK’s tallest piece of public art to raise money for nystagmus research at Moorfields and UCL.

They signed up straight away.

The big day came, but the weather was certainly not what they’d been used to on vacation.

Thank you to both of you for putting up with all that ghastly rain. We hope you managed to enjoy the view from the platform at least.

Richard did all his fundraising offline, but you can still sponsor Vanessa here.

Are you signed up?

Lots of Nystagmus Network supporters are raising money for the charity by shopping online with @easyuk. Every time you shop online, the retailer gives us a free donation. All these tiny amounts can add up to quite a sum at the end of the month and really make a difference to our finances.

Plus – when you sign up and raise your first £5 in donations, @easyuk will give us a bonus £5 donation.

Please sign up and raise today.

Thank you

Yorkshire 3 Peaks – completed!

Steph and her team completed the Yorkshire 3 Peaks Challenge on Saturday in 11 hours 45 minutes. Well done, team!

They were doing this in honour of Steph’s young son, Henry, who has nystagmus and they’ve so far raised over £1,000 for the Nystagmus Network!

Thank you from everyone at the charity.

You can still sponsor Steph here.

They did it!

Although the Team Nystagmus Network / Moorfields Eye Charity fundraising abseil at the ArcelorMittal Orbit couldn’t go ahead on Sunday morning as planned due to heavy rain and high winds, Vicki and Tom took advantage of some available slots on Saturday morning and took their leap for nystagmus research then.

Congratulations, Vicki and Tom! You’re amazing!

The rest of the team are just waiting for confirmation of their new date for their abseil which will be some time in October. we’ll keep you posted.

 

Sign up to the Nystagmus Network lottery

Did you know that for just £1 per week you could be in with a chance to win £25,000? You could, if you signed up to the Nystagmus Network lottery.

The even better news is that, once all the prizes are paid for, all profits come directly to the Nystagmus Network as a donation.

If you’d like to find out more and sign up, please click the link.

The abseil is this weekend!

This Sunday morning Claire A, Claire B, Glen, Matt, Richard B, Richard P, Tom, Vanessa, Vicki and Vicky will be scaling down the UK’s tallest piece of public art, the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park to raise money for nystagmus research at Moorfields and University College, London.

Our 10 intrepid Team Nystagmus Network abseilers were set a sponsorship target of £250 each. At the time of writing they’ve already far exceeded that target and look set to be able to make a real impact on funding for nystagmus research over the coming months.

We wish them all well on behalf of the entire nystagmus community.

Good luck, everyone!

 

Another Nystagmus Network first!

Thanks to Paul Bowry and his family, the Nystagmus Network will be enjoying our first ever fundraising Car Boot Sale on Tuesday 18 September.

Paul has been running boot fairs at the site in Essex for some time. Following his grandson’s nystagmus diagnosis, Paul decided to negotiate a charity collection with the organisers at one of their events.

This proved so successful that Paul decided to take the next step and seek permission to hold a dedicated charity event, with all proceeds going to the Nystagmus Network and a local group setting up a sensory room for children with multiple disabilities.

If you’re in the Essex area, please go along to support Paul. Anyone with nystagmus is guaranteed free entry and a very warm welcome from Paul!

#notyourusualnightout

Here’s a fundraising opportunity with a difference!

You can choose to cycle a 50k or 100k route around London, Bristol, Glasgow or Liverpool AT NIGHT with Nightrider 2019.

Provided you book your own place before 31 December, the registration fee is just £75. Then, simply set up your Justgiving page linked to the Nystagmus Network as usual and every penny you raise in sponsorship after that will come directly to the charity.

Let us know when you’ve secured your place. We’re here to support you!