Please help us to promote national and international Nystagmus Awareness Day, on Wednesday 20 June, in clinics and hospitals all over the UK and the world. We have free to … Continue reading Nystagmus Awareness Day – for clinics
Category: Information and Support
Do you know your ECLO?
If you or someone in your family has nystagmus, then make sure you meet your ECLO (Eye Clinic Liaison Officer). You can ask for them the next time you visit … Continue reading Do you know your ECLO?
It’s Tuesday – that’s Nystagmus Networking day on Facebook!
We call our charity the Nystagmus Network, because it’s very important to us to help people affected by nystagmus to get together for mutual support. There is no better feeling … Continue reading It’s Tuesday – that’s Nystagmus Networking day on Facebook!
Monday Focus on Facebook
Every Monday over on our Facebook page we focus on a particular nystagmus-related topic to get the week started with a great conversation. Topics we have covered so far have included … Continue reading Monday Focus on Facebook
Explaining nystagmus to a child
Parents often wonder when is the right time to talk to their children about nystagmus and what words to use. Our free to download booklet “Wobbly Eyes” can help. Covering … Continue reading Explaining nystagmus to a child
Nystagmus Network launches new information and support line
Anyone needing information or support from the Nystagmus Network can now speak to someone on the phone throughout normal office hours. From Monday to Friday, Sue will answer the phone … Continue reading Nystagmus Network launches new information and support line
University Hospital Southampton Questionnaire Study 2017
Would you like to participate in a study researching the support and information available for people with Nystagmus and their families? The team based at the University Hospital Southampton are running … Continue reading University Hospital Southampton Questionnaire Study 2017