You can take part in a new study of services for people with impaired vision. Commissioned by major sight loss charities, the research aims to drive improvements to services. Phone … Continue reading Take part in sight services research
Category: Information and Support
Fingers crossed
Today at the Nystagmus Network we have our fingers firmly crossed. Why? Because we want to say a big THANK YOU to all the lovely national lottery players who helped … Continue reading Fingers crossed
VICTA Parent Portal launches today
A brand new website signposting all the organisations available to help parents supporting a child with impaired vision launches today. Nystagmus Network is proud that our Education resource HUB features … Continue reading VICTA Parent Portal launches today
#YouMadeItHappen – Delilah
This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Delilah and her family offered the perfect story … Continue reading #YouMadeItHappen – Delilah
#YouMadeItHappen – Roger
This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Roger inspired us to write a brand new … Continue reading #YouMadeItHappen – Roger
#YouMadeItHappen – Nadine
This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Nadine decided she didn’t want her little daughter … Continue reading #YouMadeItHappen – Nadine
#YouMadeItHappen – Mike
This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Mike is a professional benefits expert who also … Continue reading #YouMadeItHappen – Mike
#YouMadeItHappen – Patsy
This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Patsy is one of our newest volunteers. It’s … Continue reading #YouMadeItHappen – Patsy
Can I tell you about Nystagmus?
Nadine Neckles wrote the book ‘Can I tell you about Nystagmus?’ so that her young daughter, who has nystagmus, could live in a world more nystagmus aware. ‘Can I tell … Continue reading Can I tell you about Nystagmus?
Publication update
Thanks go to Mike Hughes, our volunteer benefits adviser and all round expert on everything to do with benefits and nystagmus. Mike has updated his booklet on DLA, PIP and … Continue reading Publication update