a blurred street scene

What do we see?

In answer to the question ‘What does a visually impaired child see?’ the Thomas Pocklington Trust has produced a new video simulating the 5 most commonly seen forms of vision impairment in children and young people, including nystagmus. The film, What do we see? 2, shows what it’s like to have nystagmus, retinitis pigmentosa, infantile or juvenile cataracts, retinopathy of prematurity and optic atrophy. Footage was recorded in a school setting.

Members of the Nystagmus Network forum for adults living with congenital nystagmus viewed the first draft of the nystagmus simulation and helped shape the final version. We are very grateful for their feedback.

TPT said: “Thank you so much for all your support and guidance throughout the making of this. We couldn’t have done it without you.”

Watch the video on YouTube here

The Nystagmus Network logo and the words 'parent power'

Parent Power is back!

Thanks to a grant from our friends at the Thomas Pocklington Trust, the Nystagmus Network is delighted to be able to offer parents and carers of children and young people with nystagmus the opportunity to attend one of a brand new series of Parent Power webinars.

Each webinar will introduce parents to the special educational needs support available in schools and early years settings and empower you to access it for your child. We’ll even introduce you to EHC plans.

Each session will be led by Karen, a qualified and experienced trainer from IPSEA (the Independent Provider of Special Education Advice), supported by the charity’s volunteer education advocate, Claire and Sue from the staff team.

The one day webinars (10am to 2.45pm) are FREE and will be held online from November, 2021 through to March 2022, so there’s bound to be one that suits your schedule.

Places on the next two workshops are already open for booking.

Book your place for Parent Power on Friday 14 January here

Book your place for Parent Power on Friday 11 February here

Members of the Nystagmus Network can request advice from our volunteer education advocate, Claire or ask for a referral to our Education Advocacy Service for one to one support with casework.

Look UK logo.

Get university ready with LOOK UK


 Saturday 08 February – 13:00 – 16:00


Thomas Pocklington Trust, Entrance D, Tavistock House South, Tavistock Square, London, WC1H 9LG
LOOK UK have teamed up with London Vision to run a free event for visually impaired young people considering university. Their ‘Get University Ready’ event is designed to empower visually impaired young people with the knowledge they need to make an informed decision about higher education.

Participants will learn about:

• Disabled Students Allowance (DSA)
• Support services available at university
• Reasonable adjustments 
• Accessibility of course materials.

If you’re visually impaired, 14 and above and considering going to university, you can apply online, to get in touch with one of the LOOK team, email LOOK Events officer Elin Williams on: [email protected]

or call: 07470 872782

Please book your place by 26 January.
Places are limited! Book now!

Apply online here

Into employment with VI

Latest study shows improvements for young people with vision impairment entering employment but more needs to be done

The latest results of a Longitudinal Transition Study published by the Vision Impairment Centre for Teaching and Research (VICTAR) at the University of Birmingham and Thomas Pocklington Trust show an increase to those entering employment but inconsistencies of support across the country highlight that more needs to be done.

The study has followed the experiences of the same group of young people with vision impairment from secondary school into further education and employment.

Read the full report and the key findings here.