Our video this week focuses on Wobbly Wednesday and why your support is so important! It helps us raise awareness of nystagmus and make it the topic of discussion for … Continue reading Wobbly Wednesday – show your support!
Category: Living with nystagmus
Do you want to ski like Josh?
Our son Joshua was born with oculo-cutaneous albinism in 2003. It was a surprise to both our families as no one on either side had any recollection of anyone in … Continue reading Do you want to ski like Josh?
Skiing with nystagmus
If you would like to take part in a skiing event please complete the form below.
No limits
This week the video blog at the Nystagmus Network features the amazing Josh! Josh is a keen skier who loves to take part in ski competitions. However, he was … Continue reading No limits
A mum with nystagmus shares her story
I made my first contribution to the Nystagmus Network Focus newsletter after much parental cajoling and days, weeks, months, if not years, of adolescent procrastination, in the mid-1990s. To save … Continue reading A mum with nystagmus shares her story
Tom and his new class at school
Our latest video blog features an interview with one of our young members! In the video Tom talks about starting his new class at school and how he is a … Continue reading Tom and his new class at school
Fundraising for the Nystagmus Network
Our latest video blog features an interview by our very own Sue with two of the charity’s fundraisers! Gavin and Paula Birch recently held a fun day and football match … Continue reading Fundraising for the Nystagmus Network
Nystagmus and the new school term – by Elisheva Sokolic
When your child has nystagmus there might be slightly more to think about before you wave goodbye at the school gates than new shoes and homework diaries. Especially in the … Continue reading Nystagmus and the new school term – by Elisheva Sokolic
Nystagmus and photography
Our third video blog has been recorded by Steve McKay who is a trustee at the Nystagmus Network! During the video Steve talks about how he took up photography and … Continue reading Nystagmus and photography
Rugby champion shares his nystagmus story!
I’m Wil Maudsley and I was diagnosed with nystagmus at three months old. From the outset my family decided that I would do everything my peers would do and I … Continue reading Rugby champion shares his nystagmus story!