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Author: Guest Author

Nystagmus and the new school term – by Elisheva Sokolic


When your child has nystagmus there might be slightly more to think about before you wave goodbye at the school gates than new shoes and homework diaries. Especially in the … Continue reading Nystagmus and the new school term – by Elisheva Sokolic

Posted on August 25, 2016August 25, 2016Author Guest AuthorCategories Living with nystagmus, Parent storiesTags blog, parent, school

Rugby champion shares his nystagmus story!


I’m Wil Maudsley and I was diagnosed with nystagmus at three months old. From the outset my family decided that I would do everything my peers would do and I … Continue reading Rugby champion shares his nystagmus story!

Posted on July 28, 2016July 28, 2016Author Guest AuthorCategories Living with nystagmusTags nystagmus, personal story, rugby, sport

Parents share their delight in their son’s success


When Maxine and Matthew Wilson’s son, Charlie, was diagnosed with nystagmus at six months old, they freely admit they went into a panic, which is probably what most parents do … Continue reading Parents share their delight in their son’s success

Posted on July 14, 2016July 14, 2016Author Guest AuthorCategories Living with nystagmus, Parent storiesTags nystagmus, parent

Meet Lucie!


Hi. I’m Lucie from Hampshire. I’m 21 years old and I’ve had nystagmus and ocular albinism since birth. I wanted to offer some comforting words to any young people or … Continue reading Meet Lucie!

Posted on June 2, 2016July 13, 2016Author Guest AuthorCategories Living with nystagmus, PostsTags adult, nystagmus

Sound tennis


have always enjoyed sport but often found that trying to take part was frustrating due to my nystagmus, particularly with sports that require seeing the movement of a ball and … Continue reading Sound tennis

Posted on April 18, 2016April 1, 2016Author Guest AuthorCategories Living with nystagmus, PostsTags adult, Focus, nystagmus, sport
Sophie Brown

Can people see past my wobbly eyes?


It’s a traumatic experience for parents when their baby is diagnosed with an unknown condition. Mine didn’t know what to do when the doctor told them that their little girl … Continue reading Can people see past my wobbly eyes?

Posted on April 11, 2016April 1, 2016Author Guest AuthorCategories Living with nystagmus, PostsTags Focus, nystagmus, sophie, young adult
Hana's daughter

I’m the parent I never thought I’d be


I had always planned on being a laid back parent. My son, born with perfect vision, had been a breeze. And then my daughter entered school. Even though she had … Continue reading I’m the parent I never thought I’d be

Posted on April 4, 2016April 1, 2016Author Guest AuthorCategories Parent stories, PostsTags children, Focus, nystagmus, parent
Sophie Brown

Wobble and me (part 2)


I’d be foolish to pretend that secondary school was a breeze with nystagmus. There were two ways to go about it; suffer in silence, or rise to the challenge. As … Continue reading Wobble and me (part 2)

Posted on March 31, 2016April 1, 2016Author Guest AuthorCategories Living with nystagmus, PostsTags Focus, nystagmus, sophie, young adult
George and his mum

George has nystagmus – goodbye!


My son, George, has congenital idiopathic nystagmus. The terminology may be familiar to ophthalmologists, but it’s baffling to anyone else. In George’s case, no one can identify a cause. So … Continue reading George has nystagmus – goodbye!

Posted on March 30, 2016April 1, 2016Author Guest AuthorCategories Parent stories, PostsTags children, Focus, nystagmus
Sophie Brown

Wobble and me (part 1)


The woman at the piano stopped playing. She asked me whether I liked to sing. I replied I loved singing! She told me to join in with the rest of … Continue reading Wobble and me (part 1)

Posted on March 30, 2016April 1, 2016Author Guest AuthorCategories Living with nystagmus, PostsTags Focus, nystagmus, sophie, young adult

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