This weeks video blog features Dan giving an overview of the recent UK Eye Genetics Group Conference which was held on the 25th November. The Nystagmus Network was a sponsor … Continue reading An overview of the The UK Eye Genetics Group Conference 2016
My daughter has congenital idiopathic nystagmus. Idiopathic means that despite having every test available no physiological cause can be found. Congenital means that it was either present at birth or … Continue reading Discovering your baby has nystagmus
This week the video blog at the Nystagmus Network features our very own Sue! The video is her interview with Peterborough Community Radio which is hosted by one of our … Continue reading Peterborough Community Radio interview
We are delighted to announce the final dates and times for our skiing taster sessions for members of the Nystagmus Network! There are three different venues offering the group sessions … Continue reading Sign up to ski!
Our latest video for our blog introduces Wobbly Wednesday, the annual awareness raising day for nystagmus! The video features some of our trustees, including our founder and chairman explaining why … Continue reading Why is Wobbly Wednesday so important? Watch and find out!
Jon and Rachael Sweeney organised a charity rock and roll night at their local social club on Saturday 29 October. Their son, Oliver, has nystagmus. They wanted to raise money … Continue reading Charity rock and roll night
On Saturday 29 October young Research Orthoptist, Daniel Osborne, kicked off a whole raft of Wobbly Wednesday activities at the Southampton Eye Unit in real style by riding a 12 … Continue reading A very wobbly unicycle ride
Our video this week focuses on Wobbly Wednesday and why your support is so important! It helps us raise awareness of nystagmus and make it the topic of discussion for … Continue reading Wobbly Wednesday – show your support!
Our son Joshua was born with oculo-cutaneous albinism in 2003. It was a surprise to both our families as no one on either side had any recollection of anyone in … Continue reading Do you want to ski like Josh?
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