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Supporting people living with nystagmus

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Category: Posts

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Regular giving


The Nystagmus network relies entirely on membership subscriptions, fundraising, gifts in wills and donations to be able to continue its important work supporting the nystagmus community, raising awareness of the … Continue reading Regular giving

Posted on February 18, 2019February 18, 2019Author Sue RickettsCategories Fundraising, PostsTags CAF Donate, donations, regular giving

Free benefits information


Information on nystagmus, DLA and PIP is available free of charge directly from our website to anyone who needs it. Download here. Individual support from our volunteer benefits adviser is … Continue reading Free benefits information

Posted on December 9, 2018December 7, 2018Author Sue RickettsCategories Advent Calendar, Information and Support, Living with nystagmus, PostsTags benefits, DLA, membership, PIP

Never a better time to join


Joining the Nystagmus Network as a member means becoming part of the biggest nystagmus patient group in Europe. Alongside all the other benefits of membership, TODAY ONLY new members also … Continue reading Never a better time to join

Posted on December 8, 2018December 7, 2018Author Sue RickettsCategories Advent Calendar, PostsTags membership

Giving Tuesday is here


Why not take the opportunity today to show the charity closest to your heart just how much you care? All donations are gratefully received, especially today, but there are lots of … Continue reading Giving Tuesday is here

Posted on November 26, 2018Author Sue RickettsCategories Posts

#YouMadeItHappen – Glen


365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals  75 families calling on our education advocacy service 3 research projects funded, with … Continue reading #YouMadeItHappen – Glen

Posted on November 19, 2018November 14, 2018Author Sue RickettsCategories Charity highlights, Posts, Thank yousTags #YouMadeItHappen

#YouMadeItHappen – Steph


365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals  75 families calling on our education advocacy service 3 research projects funded, with … Continue reading #YouMadeItHappen – Steph

Posted on November 19, 2018November 15, 2018Author Sue RickettsCategories Charity highlights, Posts, Thank yousTags #YouMadeItHappen
Simon in Nystagmus Network T shirt.

#YouMadeItHappen – Simon


365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals  75 families calling on our education advocacy service 3 research projects funded, with … Continue reading #YouMadeItHappen – Simon

Posted on November 19, 2018November 14, 2018Author Sue RickettsCategories Charity highlights, Posts, Thank yousTags #YouMadeItHappen
Jay Self wearing scrubs.

Does albinism protect against AMD?


We are seeking potential research candidates on behalf of researchers in Southampton (Jay Self and Helena Lee) who must be over the age of 60 and have any form of … Continue reading Does albinism protect against AMD?

Posted on September 3, 2018June 26, 2019Author Sue RickettsCategories Posts, researchTags albinism, AMD, ocular albinism, University of Southampton

Nystagmus Research Conference 2018


The Nystagmus Network is hosting a nystagmus research conference later this year. Delegates are senior researchers, academics and clinicians from the top UK nystagmus research centres, with expertise in testing … Continue reading Nystagmus Research Conference 2018

Posted on August 2, 2018Author Sue RickettsCategories Posts

Seeing Beyond The Eyes


The Nystagmus Network is pleased to share this guest post from our friends at Visualise Training and Consultancy. The new guide ‘Seeing Beyond The Eyes’ includes details of the charity’s … Continue reading Seeing Beyond The Eyes

Posted on August 2, 2018March 30, 2023Author Sue RickettsCategories Guest posts, Information and Support, PostsTags awareness, clinicians, information, living with nystagmus, nystagmus, support, Visualise Training and Consultancy

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