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Category: Posts

ANUK conference 2019


Conference 2019 Learn about aniridia and related conditions from each other, and professionals in medical and related fields. Find out how those affected by aniridia deal with it every day. … Continue reading ANUK conference 2019

Posted on May 16, 2019May 16, 2019Author Sue RickettsCategories Events, Guest posts, PostsTags aniridia, ANUK

Pizza in Paris


A report by John Sanders, former Nystagmus Network UK chairman and development manager, on the recent Open Day of the French Nystagmus Network Nanterre, Paris, France, Saturday, April 6, 2019 … Continue reading Pizza in Paris

Posted on May 2, 2019May 2, 2019Author Sue RickettsCategories PostsTags Association Mouvement Nystagmus, French Nystagmus Network

Daniel’s a man on a mission


Man on a Mission with Low Vision, visually impaired entrepreneur Daniel Williams is working to raise awareness of the value to business of meeting the needs of visually impaired customers … Continue reading Daniel’s a man on a mission

Posted on April 30, 2019April 30, 2019Author Sue RickettsCategories Information and Support, Open Day 2019, PostsTags Daniel Williams, Visualise Training and Consultancy
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April deals on our Ultrachallenges


Push Yourself Further – 10 great events in 2019 Are you a regular walker and new to endurance events? Perhaps a seasoned trekker looking for testing adventures? Or even a … Continue reading April deals on our Ultrachallenges

Posted on March 29, 2019March 29, 2019Author Sue RickettsCategories Fundraising, PostsTags Ultra Challenges
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Regular giving


The Nystagmus network relies entirely on membership subscriptions, fundraising, gifts in wills and donations to be able to continue its important work supporting the nystagmus community, raising awareness of the … Continue reading Regular giving

Posted on February 18, 2019February 18, 2019Author Sue RickettsCategories Fundraising, PostsTags CAF Donate, donations, regular giving

Free benefits information


Information on nystagmus, DLA and PIP is available free of charge directly from our website to anyone who needs it. Download here. Individual support from our volunteer benefits adviser is … Continue reading Free benefits information

Posted on December 9, 2018December 7, 2018Author Sue RickettsCategories Advent Calendar, Information and Support, Living with nystagmus, PostsTags benefits, DLA, membership, PIP

Never a better time to join


Joining the Nystagmus Network as a member means becoming part of the biggest nystagmus patient group in Europe. Alongside all the other benefits of membership, TODAY ONLY new members also … Continue reading Never a better time to join

Posted on December 8, 2018December 7, 2018Author Sue RickettsCategories Advent Calendar, PostsTags membership

Giving Tuesday is here


Why not take the opportunity today to show the charity closest to your heart just how much you care? All donations are gratefully received, especially today, but there are lots of … Continue reading Giving Tuesday is here

Posted on November 26, 2018Author Sue RickettsCategories Posts

#YouMadeItHappen – Glen


365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals  75 families calling on our education advocacy service 3 research projects funded, with … Continue reading #YouMadeItHappen – Glen

Posted on November 19, 2018November 14, 2018Author Sue RickettsCategories Charity highlights, Posts, Thank yousTags #YouMadeItHappen

#YouMadeItHappen – Steph


365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals  75 families calling on our education advocacy service 3 research projects funded, with … Continue reading #YouMadeItHappen – Steph

Posted on November 19, 2018November 15, 2018Author Sue RickettsCategories Charity highlights, Posts, Thank yousTags #YouMadeItHappen

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