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Supporting people living with nystagmus

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Category: Posts

Become a member of the Nystagmus Network


As a small charity, the Nystagmus Network relies heavily on regular income from membership subscriptions. Over the years our membership has steadily grown and at the same time the cost … Continue reading Become a member of the Nystagmus Network

Format VideoPosted on January 27, 2017Author Sue RickettsCategories PostsTags charity, membership, video

Want to become a trustee at the Nystagmus Network?


As we all go into 2017, are you looking for a new opportunity to give your energy, time, skills and talent to support the Nystagmus Network? We need people to … Continue reading Want to become a trustee at the Nystagmus Network?

Posted on January 6, 2017Author Sue RickettsCategories Posts, volunteerTags nystagmus, trustee, volunteer

An inspiring story about passing exams!


We wanted to begin 2017 by sharing a good news story by Meg Tatton which we hope will inspire other parents and show that there should be no barriers in the … Continue reading An inspiring story about passing exams!

Posted on January 5, 2017January 5, 2017Author Sue RickettsCategories Living with nystagmus, Parent stories, PostsTags living with nystagmus, nystagmus, success

Merry Christmas everyone!


Merry Christmas everyone! It’s been a very busy year at the Nystagmus Network with lots taking place! Our Chairman Richard has a short Christmas message he would like to share … Continue reading Merry Christmas everyone!

Format VideoPosted on December 22, 2016January 5, 2017Author Sue RickettsCategories Charity highlights, PostsTags chairman, christmas, nystagmus

Steve McKay announcement


It is with great sadness that we announce the sudden and unexpected death of Trustee Steve McKay from Newton Abbot in Devon.  Steve suffered a tragic road accident on Thursday … Continue reading Steve McKay announcement

Format VideoPosted on December 16, 2016Author Sue RickettsCategories Charity highlights, PostsTags nystagmus, nystagmus network, steve mckay
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Request the bank details of the Nystagmus Network


Thank you for requesting the bank details of the Nystagmus Network. To make your donation or to transfer your fundraising directly to the charity please complete the short form below. … Continue reading Request the bank details of the Nystagmus Network

Posted on December 7, 2016February 28, 2018Author Sue RickettsCategories Posts

An overview of the The UK Eye Genetics Group Conference 2016


This weeks video blog features Dan giving an overview of the recent UK Eye Genetics Group Conference which was held on the 25th November. The Nystagmus Network was a sponsor … Continue reading An overview of the The UK Eye Genetics Group Conference 2016

Format VideoPosted on December 1, 2016December 7, 2016Author Sue RickettsCategories Charity highlights, PostsTags conference, nystagmus, video blog

Discovering your baby has nystagmus


My daughter has congenital idiopathic nystagmus. Idiopathic means that despite having every test available no physiological cause can be found. Congenital means that it was either present at birth or … Continue reading Discovering your baby has nystagmus

Posted on November 24, 2016November 30, 2016Author Sue RickettsCategories Living with nystagmus, Parent stories, PostsTags nystagmus, parent story

Peterborough Community Radio interview


This week the video blog at the Nystagmus Network features our very own Sue! The video is her interview with Peterborough Community Radio which is hosted by one of our … Continue reading Peterborough Community Radio interview

Posted on November 17, 2016Author Sue RickettsCategories Charity highlights, Fundraising, Living with nystagmus, Parent stories, PostsTags nystagmus, wobbly wednesday

Sign up to ski!


We are delighted to announce the final dates and times for our skiing taster sessions for members of the Nystagmus Network! There are three different venues offering the group sessions … Continue reading Sign up to ski!

Posted on November 11, 2016Author Sue RickettsCategories Living with nystagmus, PostsTags skiing

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