We asked a group of Nystagmus Network supporters what questions they would most like to put to nystagmus researchers. Then we found researchers to answer them. Your questions were answered … Continue reading Your nystagmus research questions answered
Category: research
Fight for Sight launches survey on impact of Covid-19 on people with eye conditions
Eye research charity Fight for Sight has launched a survey to gather broader insights into the personal impact that Covid-19 is having on people with sight loss and eye conditions. … Continue reading Fight for Sight launches survey on impact of Covid-19 on people with eye conditions
A PhD studentship in nystagmus research – apply now
Applications are now invited for a PhD Studentship to undertake clinical research to address visual impairment associated with nystagmus, focusing on quality of life or causes (including genetic), diagnostic testing … Continue reading A PhD studentship in nystagmus research – apply now
30 years of nystagmus research – what a difference it has made
When my daughter was 6 weeks old a paediatrician at baby clinic told me she was blind. Just like that. No preamble. It was a devastating experience, a cruel message, … Continue reading 30 years of nystagmus research – what a difference it has made
Nystagmus Network research investment 2020 – 2021
An update of our post doctoral award For those of you eagerly awaiting news, alongside charity trustees, of the outcome of 2019/2020 applications for the new post doctoral research project … Continue reading Nystagmus Network research investment 2020 – 2021
Looking good, Mike!
Can you believe that it’s THREE MONTHS TODAY since Mike set off on his crazy ‘wiggly walk’ the entire length of New Zealand to raise money for nystagmus research? And … Continue reading Looking good, Mike!
Research into decision making for genetic testing
A team at Cardiff University is conducting a study to identify the factors that influence the decisions made by genetic counselling patients about proceeding with genetic tests. They are looking to recruit … Continue reading Research into decision making for genetic testing
Parents of adolescents with nystagmus: research participation opportunity
Ifigeneia Manitsa BEd, MSc, AFHEA (pictured) is a Psychology Researcher at Kingston University London. Her research is about the social and academic inclusion of adolescents with and without visual impairments. Ifigeneia has … Continue reading Parents of adolescents with nystagmus: research participation opportunity
Circadian Therapeutics Sleep Health Survey
Circadian Therapeutics are seeking vision-impaired individuals between 18 – 70 years to participate in a research project exploring experiences of sleep and daily rhythm disruption. In partnership with the Blind … Continue reading Circadian Therapeutics Sleep Health Survey
Research on nystagmus and glaucoma
As previously reported here, the Research Unit for Nystagmus at Cardiff University has been looking for people with nystagmus to take part in a survey that aimed to further their … Continue reading Research on nystagmus and glaucoma