Keeping you connected


The Nystagmus Network is working hard to bring you closer together with other people living with nystagmus or with parents and carers of children and young people who have the condition. We are now running online support groups for adults with congenital or acquired nystagmus and for parents and carers. You can join zoom chats … Continue reading Keeping you connected

Your nystagmus research questions answered – question 3


We asked a group of Nystagmus Network supporters what questions they would most like to put to nystagmus researchers. Then we found researchers to answer them. Your questions were answered by Question 3: Would it cause more problems to stop the eye wobble? (HL) We have very poor understanding of nystagmus, why it occurs and … Continue reading Your nystagmus research questions answered – question 3

Your nystagmus research questions answered – question 2


We asked a group of Nystagmus Network supporters what questions they would most like to put to nystagmus researchers. Then we found researchers to answer them. Your questions were answered by Question 2: Why isn’t there a focus on cure? (JS) Sometimes people’s focus changes from cure to what we can do right now to … Continue reading Your nystagmus research questions answered – question 2

Your nystagmus research questions answered


We asked a group of Nystagmus Network supporters what questions they would most like to put to nystagmus researchers. Then we found researchers to answer them. Your questions were answered by Question 1: Will there ever be a cure for nystagmus? Answer: (JS) Nystagmus is the result of a lot of different things going wrong. … Continue reading Your nystagmus research questions answered

Manchester nystagmus network


The next meeting of our new North West regional group will take place on Saturday 26 January in Manchester. Nystagmus Network trustee, Marie Turnbull will once again be your host and this time she will be joined by our volunteer Education Advocate, Frances Lilley. We look forward to welcoming back the families and adults who … Continue reading Manchester nystagmus network

Join our Manchester group


The first meeting of our brand new North West regional group took place on Saturday 17 November in Manchester. Huge thanks to Nystagmus Network trustee, Marie Turnbull for hosting, to Mike and Lindsi for their professional input and to the families and adults who came along. The next meeting of this group is on Saturday 26 … Continue reading Join our Manchester group