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News


Stay up to date with all our latest stories and features in one place.

Read our news here

 

Helena Lee

Dr Helena Lee on treatment for albinism and childhood eye conditions


Improving eye development for children with albinism and other sight disorders – hear from groundbreaking researcher Dr Helena Lee, Academic Clinical Lecturer in Ophthalmology at the University of Southampton. Watch … Continue reading Dr Helena Lee on treatment for albinism and childhood eye conditions

Posted on December 11, 2018December 11, 2018Author Sue RickettsCategories research

Katie lobbies MPs


A Wandsworth student visited the House of Commons to lobby Parliament this week on behalf of Young Vision Alliance (YVA), according to an article in Your Local Guardian. Katie, who … Continue reading Katie lobbies MPs

Posted on December 10, 2018December 10, 2018Author Sue RickettsCategories EducationTags campaigns, Young Vision Alliance

Education information for all


Have you visited our online Education Resource HUB? You’ll find everything you need to know about supporting a child through education, as a parent, carer or teacher, from the early … Continue reading Education information for all

Posted on December 10, 2018March 22, 2024Author Sue RickettsCategories Advent Calendar, Education, Information and SupportTags Education Resource HUB, membership

Last orders for Christmas cards!


Nystagmus Network Christmas cards will no longer be available after today, so please place your order NOW! Order your cards here.

Posted on December 10, 2018December 6, 2018Author Sue RickettsCategories Nystagmus is ... this ChristmasTags Christmas cards

Free benefits information


Information on nystagmus, DLA and PIP is available free of charge directly from our website to anyone who needs it. Download here. Individual support from our volunteer benefits adviser is … Continue reading Free benefits information

Posted on December 9, 2018December 7, 2018Author Sue RickettsCategories Advent Calendar, Information and Support, Living with nystagmus, PostsTags benefits, DLA, membership, PIP

Never a better time to join


Joining the Nystagmus Network as a member means becoming part of the biggest nystagmus patient group in Europe. Alongside all the other benefits of membership, TODAY ONLY new members also … Continue reading Never a better time to join

Posted on December 8, 2018December 7, 2018Author Sue RickettsCategories Advent Calendar, PostsTags membership

Free run places


Would you like to take up a FREE run place for the Nystagmus Network? We have places in the London Vitality 10k on Monday 27 May (Bank Holiday Monday) and are about … Continue reading Free run places

Posted on December 7, 2018December 6, 2018Author Sue RickettsCategories Advent Calendar, FundraisingTags free run places, nystagmus, sponsored run

Proud of our track record


The Nystagmus Network has been funding nystagmus research since the 1990s and, thanks entirely to the generosity of our members, fundraisers and supporters, we continue to do so today and … Continue reading Proud of our track record

Posted on December 6, 2018Author Sue RickettsCategories Advent Calendar, researchTags Nystagmus is ... this Christmas, nystagmus research

Want to run the New York marathon 2019 for us?


You could combine your place in one of the most prestigious runs in the world with the holiday of a lifetime, next November. Sadly, the Nystagmus Network is unable to … Continue reading Want to run the New York marathon 2019 for us?

Posted on December 5, 2018Author Sue RickettsCategories FundraisingTags bucket list, New York marathon, sponsored run
Screenshot of Sue from video.

The Small Charities Coalition advert


97% of charities in the UK are small. The Nystagmus Network is so proud to be a small charity and part of The Small Charities Coalition. We all got together … Continue reading The Small Charities Coalition advert

Posted on December 5, 2018Author Sue RickettsCategories Charity highlights, Fundraising, Nystagmus is ... this ChristmasTags Christmas advert, Small Charities Coalition

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