Blog – Page 9 – Nystagmus Network

Claudia wears a white top, glasses and a floral crown.

Claudia’s nystagmus story

Thank you to everyone sharing their stories with us for Nystagmus Awareness Day 2023. You can share your story here This is Claudia’s story … Ours isn’t a complete journey, … Continue reading Claudia’s nystagmus story

Ella wears a pink dress and stands with someone wearing a large character costume.

Ella’s nystagmus story

We are delighted to share your stories of living with nystagmus to help raise awareness. You can share your story here This is Ella’s story … Ella was first diagnosed … Continue reading Ella’s nystagmus story

Robyn stands in a garden, wearing a Nystagmus Network T-shirt.

Robyn’s nystagmus story

All this week we’ve been sharing your nystagmus stories to help raise awareness of nystagmus for Nystagmus Awareness Day 2023. You can share your story here Robyn was first observed … Continue reading Robyn’s nystagmus story

Isabelle’s story

If you’d like to share your nystagmus story to help raise awareness we would love to hear from you. Share your story here This is Isabelle’s story … I was … Continue reading Isabelle’s story

Savannah wears a yellow polo shirt and blue-framed glasses.

Savannah’s nystagmus story

We are sharing your stories of nystagmus to help raise awareness of the condition. You can share your story here This is Savannah’s story Savannah’s Congenital Nystagmus was noticed by … Continue reading Savannah’s nystagmus story

Hazel is running a marathon. She is wearing a white T-shirt, black shorts and a bandana.

Hazel’s nystagmus story

Thank you to everyone who has shared their story for Nystagmus Awareness Day 2023 to help people understand the condition better. You can share your story here This is Hazel’s … Continue reading Hazel’s nystagmus story

Harshal’s nystagmus story

This year for Nystagmus Awareness Day people are sharing their personal stories to help everyone understand what it’s really like You can share your story here This is Harshal’s story … Continue reading Harshal’s nystagmus story

Eliana is sitting on the floor cuddling a black Labrador dog.

Eliana’s story

This Nystagmus Awareness Day we’re inviting people who have nystagmus or care for someone who does to share their story. You can share your story here This is Eliana’s story … Continue reading Eliana’s story

A close up of someone wearing eye test glasses and the words 'Funding visual impairment a landscape view'.

A new report highlights the need for more investment in sight research

Nystagmus Network’s Sue is proud to have played a small part in the work behind a new report, published by NPC today, into the lack of funding for visual impairment. … Continue reading A new report highlights the need for more investment in sight research

Bryony smiles, wearing a summer dress and holding a glass of wine.

Bryony’s nystagmus story

For Nystagmus Awareness Day 2022 we’re giving you the opportunity to share your story to help others understand the impact of the condition. You can share your story here This … Continue reading Bryony’s nystagmus story