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We;re inviting everyone to share their nystagmus story in their preferred medium this Nystagmus Awareness Day. Andy has chosen to make a video. You can share your story here This … Continue reading Andy’s nystagmus story
This Nystagmus Awareness Day we’re asking you to share your story. You can share your nystagmus story here This is Sue’s story … My nystagmus story begins in 1991 when … Continue reading Sue’s nystagmus story
This Nystagmus Awareness Day we’re asking people to share their story. You can share your story here John’s nystagmus story is a letter to his 9-year-old self To the best … Continue reading John’s nystagmus story
This Nystagmus Awareness Day we’re asking you to share your story. You can share your nystagmus story here This is Sharon’s story … My nystagmus story started October 2017 when … Continue reading Sharon’s nystagmus story
This Nystagmus Awareness Day we’re asking you to share your story. This is James’s story. You can share your story here Until my son Sullivan was born, we as a … Continue reading James’s nystagmus story
We are delighted to announce that the Nystagmus Network has jointly awarded two new nystagmus research grant awards with our funding partners Fight for Sight. The two successful applicants are … Continue reading The Fight for Sight/Nystagmus Network Small Grant Award
Publication of Clinical Practice Points for managing nystagmus in childhood The Nystagmus Network has welcomed the publication of new guidance on the management of nystagmus in children by the Royal … Continue reading Nystagmus Care Pathway published
We are sorry to share the sad news that Richard Wilson, Chairman of the Nystagmus Network from 2011 to 2019, passed away over the Easter weekend. Richard’s contribution to the … Continue reading Thank you, Richard
Nystagmus Network’s Sue Ricketts travelled to Birmingham last week for the annual conference of VIEW, the national body representing Qualified Teachers of Visually Impaired children and young people (QTVIs). Delegates … Continue reading Sue at VIEW
Parents and carers of children and young people with nystagmus are warmly invited to our first Parents’ Get Together of the year. We are delighted to share that Becky Hyams … Continue reading Parents and carers get together
