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News


Stay up to date with all our latest stories and features in one place.

Read our news here

 

Mike and his nephew, both wearing WWE T-shirts, fist bump for the camera.

Mike’s Southampton family send off


As Mike takes on his latest Walk for Wiggly Eyes 4 challenge in Croatia, his Mum, Karen, tells us about an amazing party she hosted for Mike, his family and … Continue reading Mike’s Southampton family send off

Posted on May 13, 2024Author Sue RickettsCategories Charity highlights, Fundraising, Guest posts, Nystagmus heroesTags Croatia, fundraising, Mike Larcombe, nystagmus, nystagmus heroes, nystagmus network, Walk for Wiggly Eyes
Photo: Kathryn Swanston as a student orthoptist in the Orthoptic Clinic at Moorfields Eye Hospital, High Holborn Branch c. 1984.

Kathryn’s 1984 story


In September 1984 I started my training as an orthoptist at Moorfields Eye Hospital School of Orthoptics.  Back then orthoptic training was a three-year diploma course for which students received … Continue reading Kathryn’s 1984 story

Posted on May 9, 2024Author Sue RickettsCategories Ruby StoriesTags #RubyPancake, nystagmus network, Ruby Stories
A postcard for the big nystagmus meet up in London on 13 July, featuring an image of Maria Theodorou, a clinician at Moorfields.

Booking is now open for our London event


Our next big nystagmus meet up takes place in London on Saturday 13 July, from 11am to 4pm. This is your chance to hear all the latest nystagmus news, learn … Continue reading Booking is now open for our London event

Posted on May 2, 2024Author Sue RickettsCategories Charity highlights, EventsTags London. big nystagmus meet up, nystagmus, nystagmus network
A group of adults and children walking together along a gravel path in a park with large trees.

Walk with us


On 18 and 19 May we’re encouraging all our followers and supporters to get out for a walk. The weekend falls during Mental Health Awareness Week. Spending time outside with … Continue reading Walk with us

Posted on April 30, 2024May 15, 2024Author Sue RickettsCategories Charity highlights, Living with nystagmus, nystagmus networksTags mental health, Mental Health Awareness Week, nystagmus, nystagmus network, nystagmus walk, time outside
Paul is proudly smiling for the camera wearing a smart burgundy coloured school uniform.

Paul’s 1984 Story


Sometimes I really don’t know where the time goes. Back in 1984, it was my first year at secondary school, and my parents were extremely proud of me for getting … Continue reading Paul’s 1984 Story

Posted on April 19, 2024June 19, 2024Author Sue RickettsCategories Ruby StoriesTags Our Ruby Year, Ruby Stories
A young woman with long, wavy 'red' hair smiles for the camera.

Marlow’s Story


I was born with nystagmus and multiple other eye conditions. I was put in gymnastics at an early age to help with coordination and balance. This led me into cheerleading … Continue reading Marlow’s Story

Posted on April 18, 2024May 8, 2024Author Sue RickettsCategories Ruby StoriesTags Our Ruby Year, Ruby Stories
A young child wearing a purple paper crown and glasses is cuddling a blue toy and smiling for the camera.

Ruby’s Story


When Ruby was 9 months old I noticed one of her eyes shaking, which prompted me to visit our local optician. They informed me that they didn’t treat children that … Continue reading Ruby’s Story

Posted on April 18, 2024June 6, 2024Author Sue RickettsCategories Ruby StoriesTags Dog Squad, Leber Congenital Amaurosis, nystagmus, Nystagmus Awareness Day, nystagmus network, Our Ruby Year, Ruby Stories, spasmus nutans

Peter’s 1984 Story


At 12 years old, I was preparing for my first summer Scout camp in Guernsey, which required a 10-hour ferry ride from Weymouth, marking my first time leaving mainland UK. … Continue reading Peter’s 1984 Story

Posted on April 17, 2024April 17, 2024Author Sue RickettsCategories Ruby StoriesTags nystagmus, nystagmus network, Our Ruby Year, Ruby Stories
Ava holds her 'player of the week' certificate for the camera.

Ava


Ava was born with congenital nystagmus. She loves rugby and swimming. She’s full of life and lets nothing get in her way.

Posted on April 10, 2024April 17, 2024Author Sue RickettsCategories Ruby StoriesTags awareness, congenital nystagmus, nystagmus network, Our Ruby Year, Ruby Stories
Cohen smiling for the camera, wearing glasses and a white polo shirt with a black striped collar

Cohen’s Story


  “Cohen was diagnosed with congenital nystagmus when he was around 6 months old. He is now almost 10 years old. Cohen’s cousin was diagnosed with nystagmus a year or … Continue reading Cohen’s Story

Posted on April 10, 2024April 17, 2024Author Sue RickettsCategories Ruby StoriesTags awareness, congenital nystagmus, Our Ruby Year, Ruby Stories

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