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Nystagmus Network

Supporting people living with nystagmus

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Blog


Stay up to date with all our latest news, stories and features in one place.

Read our blog here

Meet our new Nystagmus Network volunteers!


Today we are excited to officially announce our new volunteers at the Nystagmus Network! Earlier this year we started a recruitment drive to find people who were passionate and committed … Continue reading Meet our new Nystagmus Network volunteers!

Posted on September 8, 2016September 12, 2016Author Daniel LewiCategories Charity highlights, volunteerTags nystagmus, volunteer

Fundraising for the Nystagmus Network


Our latest video blog features an interview by our very own Sue with two of the charity’s fundraisers! Gavin and Paula Birch recently held a fun day and football match … Continue reading Fundraising for the Nystagmus Network

Format VideoPosted on September 1, 2016September 1, 2016Author Daniel LewiCategories Charity highlights, Fundraising, Living with nystagmus, PostsTags fundraising, nystagmus

Nystagmus and the new school term – by Elisheva Sokolic


When your child has nystagmus there might be slightly more to think about before you wave goodbye at the school gates than new shoes and homework diaries. Especially in the … Continue reading Nystagmus and the new school term – by Elisheva Sokolic

Posted on August 25, 2016August 25, 2016Author Guest AuthorCategories Living with nystagmus, Parent storiesTags blog, parent, school

Nystagmus and photography


Our third video blog has been recorded by Steve McKay who is a trustee at the Nystagmus Network! During the video Steve talks about how he took up photography and … Continue reading Nystagmus and photography

Format VideoPosted on August 24, 2016September 1, 2016Author Categories Living with nystagmus, PostsTags blog, hobby, photography

Check out our new nystagmus booklets!


One of our main objectives at the Nystagmus Network is to provide information and support to the nystagmus community. To achieve this we have been working hard reviewing all of … Continue reading Check out our new nystagmus booklets!

Posted on August 23, 2016Author Daniel LewiCategories Charity highlights, PostsTags blog, documents, support

Sue’s journey at the Nystagmus Network


Our second video blog has been recorded by Sue Ricketts. Sue has been involved with the Nystagmus Network for many years and joined the charity as the Communication and Development … Continue reading Sue’s journey at the Nystagmus Network

Format VideoPosted on August 4, 2016September 1, 2016Author Sue RickettsCategories Charity highlights, PostsTags blog, highlight, nystagmus, video

Rugby champion shares his nystagmus story!


I’m Wil Maudsley and I was diagnosed with nystagmus at three months old. From the outset my family decided that I would do everything my peers would do and I … Continue reading Rugby champion shares his nystagmus story!

Posted on July 28, 2016July 28, 2016Author Guest AuthorCategories Living with nystagmusTags nystagmus, personal story, rugby, sport

Introducing the new Nystagmus Network blog


We are delighted to announce that the Nystagmus Network is launching its new blog! Check out the video above which gives you all the information you will need about what … Continue reading Introducing the new Nystagmus Network blog

Format VideoPosted on July 21, 2016September 1, 2016Author Daniel LewiCategories Charity highlights, PostsTags blog, highlight, suppoer, video

Parents share their delight in their son’s success


When Maxine and Matthew Wilson’s son, Charlie, was diagnosed with nystagmus at six months old, they freely admit they went into a panic, which is probably what most parents do … Continue reading Parents share their delight in their son’s success

Posted on July 14, 2016July 14, 2016Author Guest AuthorCategories Living with nystagmus, Parent storiesTags nystagmus, parent

Volunteer for the Nystagmus Network


The Nystagmus Network is on the look out for more volunteers to help us support our growing community! We believe that a peer-to-peer support model will make a huge impact … Continue reading Volunteer for the Nystagmus Network

Posted on July 4, 2016August 1, 2016Author Daniel LewiCategories Posts, volunteerTags volunteer

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