This week the video blog at the Nystagmus Network features the amazing Josh! Â Josh is a keen skier who loves to take part in ski competitions. However, he was … Continue reading No limits
Tag: nystagmus
A mum with nystagmus shares her story
I made my first contribution to the Nystagmus Network Focus newsletter after much parental cajoling and days, weeks, months, if not years, of adolescent procrastination, in the mid-1990s. To save … Continue reading A mum with nystagmus shares her story
Tom and his new class at school
Our latest video blog features an interview with one of our young members! In the video Tom talks about starting his new class at school and how he is a … Continue reading Tom and his new class at school
Meet our new Nystagmus Network volunteers!
Today we are excited to officially announce our new volunteers at the Nystagmus Network! Earlier this year we started a recruitment drive to find people who were passionate and committed … Continue reading Meet our new Nystagmus Network volunteers!
Fundraising for the Nystagmus Network
Our latest video blog features an interview by our very own Sue with two of the charity’s fundraisers! Gavin and Paula Birch recently held a fun day and football match … Continue reading Fundraising for the Nystagmus Network
Sue’s journey at the Nystagmus Network
Our second video blog has been recorded by Sue Ricketts. Sue has been involved with the Nystagmus Network for many years and joined the charity as the Communication and Development … Continue reading Sue’s journey at the Nystagmus Network
Rugby champion shares his nystagmus story!
I’m Wil Maudsley and I was diagnosed with nystagmus at three months old. From the outset my family decided that I would do everything my peers would do and I … Continue reading Rugby champion shares his nystagmus story!
Parents share their delight in their son’s success
When Maxine and Matthew Wilson’s son, Charlie, was diagnosed with nystagmus at six months old, they freely admit they went into a panic, which is probably what most parents do … Continue reading Parents share their delight in their son’s success
A successful open garden event!
Garden lovers had a rare opportunity this weekend to visit the picturesque gardens of a Wiltshire country estate and help people affected by nystagmus. On Sunday 12th June Fonthill House, … Continue reading A successful open garden event!
Meet Lucie!
Hi. I’m Lucie from Hampshire. I’m 21 years old and I’ve had nystagmus and ocular albinism since birth. I wanted to offer some comforting words to any young people or … Continue reading Meet Lucie!