It is with great sadness that we announce the sudden and unexpected death of Trustee Steve McKay from Newton Abbot in Devon. Steve suffered a tragic road accident on Thursday … Continue reading Steve McKay announcement
Tag: nystagmus
An overview of the The UK Eye Genetics Group Conference 2016
This weeks video blog features Dan giving an overview of the recent UK Eye Genetics Group Conference which was held on the 25th November. The Nystagmus Network was a sponsor … Continue reading An overview of the The UK Eye Genetics Group Conference 2016
Discovering your baby has nystagmus
My daughter has congenital idiopathic nystagmus. Idiopathic means that despite having every test available no physiological cause can be found. Congenital means that it was either present at birth or … Continue reading Discovering your baby has nystagmus
Peterborough Community Radio interview
This week the video blog at the Nystagmus Network features our very own Sue! The video is her interview with Peterborough Community Radio which is hosted by one of our … Continue reading Peterborough Community Radio interview
Why is Wobbly Wednesday so important? Watch and find out!
Our latest video for our blog introduces Wobbly Wednesday, the annual awareness raising day for nystagmus! The video features some of our trustees, including our founder and chairman explaining why … Continue reading Why is Wobbly Wednesday so important? Watch and find out!
Wobbly Wednesday – show your support!
Our video this week focuses on Wobbly Wednesday and why your support is so important! It helps us raise awareness of nystagmus and make it the topic of discussion for … Continue reading Wobbly Wednesday – show your support!
No limits
This week the video blog at the Nystagmus Network features the amazing Josh! Â Josh is a keen skier who loves to take part in ski competitions. However, he was … Continue reading No limits
A mum with nystagmus shares her story
I made my first contribution to the Nystagmus Network Focus newsletter after much parental cajoling and days, weeks, months, if not years, of adolescent procrastination, in the mid-1990s. To save … Continue reading A mum with nystagmus shares her story
Tom and his new class at school
Our latest video blog features an interview with one of our young members! In the video Tom talks about starting his new class at school and how he is a … Continue reading Tom and his new class at school
Meet our new Nystagmus Network volunteers!
Today we are excited to officially announce our new volunteers at the Nystagmus Network! Earlier this year we started a recruitment drive to find people who were passionate and committed … Continue reading Meet our new Nystagmus Network volunteers!