The Nystagmus Network was proud to be granted permission to hold the first public screening anywhere in the world of a brand new short film about nystagmus at our 2017 … Continue reading World Film Première – Through my Lenses
Tag: nystagmus
My bouncing eyes baby!
Hello, my name is Charlotte and I am mother to a ridiculously delicious six year old girl named Scarlett. In every way Scarlett is a picture of happiness and joy. … Continue reading My bouncing eyes baby!
London Marathon 2017 Application
Thank you for choosing to apply to the Nystagmus Network for one of our London Marathon places. To do so, please complete the short form below.
Want to become a trustee at the Nystagmus Network?
As we all go into 2017, are you looking for a new opportunity to give your energy, time, skills and talent to support the Nystagmus Network? We need people to … Continue reading Want to become a trustee at the Nystagmus Network?
An inspiring story about passing exams!
We wanted to begin 2017 by sharing a good news story by Meg Tatton which we hope will inspire other parents and show that there should be no barriers in the … Continue reading An inspiring story about passing exams!
Merry Christmas everyone!
Merry Christmas everyone! It’s been a very busy year at the Nystagmus Network with lots taking place! Our Chairman Richard has a short Christmas message he would like to share … Continue reading Merry Christmas everyone!
Steve McKay announcement
It is with great sadness that we announce the sudden and unexpected death of Trustee Steve McKay from Newton Abbot in Devon. Steve suffered a tragic road accident on Thursday … Continue reading Steve McKay announcement
An overview of the The UK Eye Genetics Group Conference 2016
This weeks video blog features Dan giving an overview of the recent UK Eye Genetics Group Conference which was held on the 25th November. The Nystagmus Network was a sponsor … Continue reading An overview of the The UK Eye Genetics Group Conference 2016
Discovering your baby has nystagmus
My daughter has congenital idiopathic nystagmus. Idiopathic means that despite having every test available no physiological cause can be found. Congenital means that it was either present at birth or … Continue reading Discovering your baby has nystagmus
Peterborough Community Radio interview
This week the video blog at the Nystagmus Network features our very own Sue! The video is her interview with Peterborough Community Radio which is hosted by one of our … Continue reading Peterborough Community Radio interview